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October 11, 2024 - ERN-RND Network Annual Meeting 2024
September 27, 2024 - The General Assembly Timisoara: How DE unites Communities and builds Connections
September 11, 2024 - DMRF PRESS RELEASE
September 11, 2024 - General Assembly and Member Meeting in Timisoara, Romania
September 10, 2024 - Dr. Stavros Tsagkaris Receives the David Marsden Award 2024
September 10, 2024 - My Dystonia Story – Meet Vidar from Norway
September 1, 2024 - On-line Dystonia Day 2024
July 8, 2024 - Discovering a Missing Piece of the Dystonia Jigsaw: An International Collaboration on Understanding Brain Glucose Activity Patterns in Children and Young People with Dystonia
July 8, 2024 - Dr. Stavros Tsagkaris Receives the David Marsden Award 2024
June 18, 2024 - Passion in Motion: Supporting Rare Disease Day in Romania
May 30, 2024 - Voices from the community – the Dystonia Matters Podcast
May 19, 2024 - Meet Line from Norway
May 19, 2024 - Cervical Dystonia Patient Journey
May 19, 2024 - JUST PUBLISHED: The Third New Edition of The Manual of Botulinum Toxin Therapy
May 5, 2024 - SPRINT PROGRAM: Sensorimotor Retraining Program For The Re-habilitation of Isolated Cervical Dystonia in Conjunction with Neurobotulinum Toxin
April 15, 2024 - EPF Leadership Meeting & AGM in Brussel
April 12, 2024 - Empowering digital health advocacy – the inaugural Ambassador Seminar of the Boston Scientific Foundation Europe
March 30, 2024 - Meet Marius, Romania
March 28, 2024 - Board Meeting and Think Tank in Paris
March 20, 2024 - Medtronic receives CE Mark for the Percept™ RC rechargeable DBS neurostimulator with BrainSense™ technology
March 18, 2024 - Annual Meeting 2024 of the Swedish Dystonia Association
March 13, 2024 - Toxins 2024 Congress in Berlin
February 25, 2024 - Adam — Always Missed
February 10, 2024 - Hello There – Meet Julia from Germany
February 5, 2024 - 4th National Dystonia Day in Italy
February 3, 2024 - Dystonia Physio Exercise Hub
February 2, 2024 - Finnish Dystonia Association 25th Anniversary
January 28, 2024 - 6th International Dystonia Symposium in Dublin
January 25, 2024 - EPF holds Webinars on Label2Enable
January 18, 2024 - Spastic Dyphonia Days in Norway
January 8, 2024 - ESSFN Congress in Stockholm
January 2, 2024 - Survey on the Use of Non-Traditional Therapies – take part!
December 13, 2023 - Dystonia Awareness Month 2023
December 13, 2023 - Meet Salvatore from Italy
December 13, 2023 - The Move Europe
December 13, 2023 - Excessive Psychological Stress can trigger the Onset of Idiopathic Cervical Dystonia
September 25, 2023 - Hello There – Meet Milagros López Morales from Spain
September 25, 2023 - 30th Anniversary Deutsche Dystonie Gesellschaft
September 25, 2023 - Boston Scientific Foundation Europe Celebrating Five
September 25, 2023 - EPF Webinar on Medicine Shortages
September 21, 2023 - ADDER Comes to an End
September 18, 2023 - Cervical Dystonia Patient Journey Performance at EAN Congress
September 15, 2023 - Dystonia Video Project Update
September 15, 2023 - Webinar on DBS for Dystonia
September 3, 2023 - Dystonia Days Meeting
September 3, 2023 - My Dystonia Story, Meet Raquel Vaqas
September 3, 2023 - Dr. Michael Zech Receives the David Marsden Award 2023
July 26, 2023 - Unlocking Minds and Opening Doors
July 11, 2023 - Dystonia Infographics
July 2, 2023 - Dr. Michael Zech Receives the David Marsden Award 2023
June 30, 2023 - The Positive Twist Podcast
June 28, 2023 - EPF Annual General Assembly and 20th Anniversary
June 27, 2023 - 30 Years of Dystonia Europe
June 26, 2023 - Greetings from The Founder President
June 25, 2023 - Hello There – Meet Claudia, Switzerland
June 20, 2023 - EFNA – Thank You Joke, Welcome Astri
June 19, 2023 - Dystonia Webinars
June 10, 2023 - Dystonia Awareness Videos
June 2, 2023 - Updates and News in the Children’s Joy Association -Romania
May 21, 2023 - My Dystonia Story, Jan Bodenbach
May 21, 2023 - Prof Dr Dirk Dressler Introduces new Botulinumtoxin in India
May 21, 2023 - Greetings from The Founder President
May 21, 2023 - 30 Years of Dystonia Europe
May 15, 2023 - The Norwegian Dystonia Association Annual General Assembly and 30th Anniversary
May 3, 2023 - Training for Physiotherapists in Sweden
April 30, 2023 - Board Meeting Update
April 20, 2023 - 30th Anniversary Norwegian Dystonia Association
April 10, 2023 - Winter Think Tank 2023
December 19, 2022 - Dystonia Europe Newsletter Winter 2022
December 17, 2022 - Adam Kalinowski – In Memoriam
December 10, 2022 - Launch in Europe: Dystonia Physio Exercise HUB – a Digital Platform with Exercises for Cervical Dystonia
December 8, 2022 - 30th Anniversary of Associazione per la Ricerca sulla Distonia – Italy
December 7, 2022 - In Memoriam – Adam Kalinowski, President of Dystonia Europe
December 3, 2022 - Special Workshop on Physiotherapy for Cervical Dystonia
November 29, 2022 - Meet Bengt-Erik Calles, Sweden
November 28, 2022 - Very Sad News about Dystonia Europe President Adam Kalinowski
November 21, 2022 - Finnish Dystonia Days 2022 in Oulu
November 19, 2022 - Dystonia Days in Bergen, Norway 2022
November 18, 2022 - Survey Results: Assessing diagnosis and care pathways of people living with neurological disorders
November 16, 2022 - Meeting with the European Reference Network for Rare Neurological Diseases (ERN-RND)
November 16, 2022 - EPF COMPAR-EU Final Conference Advocacy Event
November 14, 2022 - What is the ERN-RND Network?
November 11, 2022 - The Dystonia Network of Australia Inc.
November 10, 2022 - Ipsen Patient Advisory Board Meeting in Paris
November 8, 2022 - MDS Awards to Dystonia Europe Medical Experts
November 7, 2022 - Annual Conference of “Dystonie-und-Du e.V.”
November 6, 2022 - MDS Congress 2022 in Madrid
November 4, 2022 - Participation at the Reuters Event: Pharma Europe 2022
November 2, 2022 - Publication on Dystonia: Dystonia Management across Europe within ERN-RND: Current State and Future Challenges
November 1, 2022 - Dystonia UK
October 5, 2022 - Dystonia Awareness Month
September 28, 2022 - A randomised double-blind controlled study of Deep Brain Stimulation for dystonia in STN or GPi – A long term follow-up after up to 15 years A summary
September 28, 2022 - Dystonia Awareness Video Project
September 24, 2022 - EFNA Board Meeting in Brussels
September 20, 2022 - Presentation of the DMA at the EAN 2022 Basal Ganglia Club Session
September 18, 2022 - Meet Sandra from Denmark: My Journey with Dystonia
September 12, 2022 - EFNA 21st Anniversary Celebration in Brussels & EFNA Advocacy Awards 2022
September 5, 2022 - Dystonia Physio Exercise Hub Project Presented at the ECRD 2022
September 2, 2022 - Dystonia Days and GA 2022
September 2, 2022 - Dystonia Awareness Month 2022. I AM… IT TOOK…
August 25, 2022 - Diet and Dystonia Survey
August 25, 2022 - Under Production: Season 2 of Dystonia Europe Podcast – The Positive Twist
August 20, 2022 - “Once upon a time” a Short Film on Dystonia and DBS Treatment
August 10, 2022 - Dystonia and Relationships: Preliminary Survey Results
August 1, 2022 - Dystonia Europe Annual General Assembly 2022
July 1, 2022 - EPF AGM 2022
June 28, 2022 - EPF CONGRESS 2022
June 22, 2022 - AMADYS, France: Workshop on Focal Dystonia: Treatment and Rehabilitation
June 18, 2022 - Meet Sandra Valenzuela, Italy
June 15, 2022 - David Marsden Award Winner Dr Susanne Knorr
June 10, 2022 - Finnish Dystonia Association Spring Meeting in Wintery Joensuu
June 8, 2022 - Meet Martina Kühn, Chairwoman Dystonie Förderverein Deutchland e. V. Germany
June 8, 2022 - Dystonia Physio Exercise Hub Project
June 5, 2022 - The new Boston Scientific Visualisation Software: Helping to Provide Personalised Deep Brain Stimulation Treatment for Dystonia Patients
June 3, 2022 - Dystonia Videos
June 2, 2022 - 30th Anniversary of the Danish Dystonia Association
June 2, 2022 - Dr Alan Scott – Death of the Inventor of Botulinum Toxin Therapy
May 30, 2022 - Winner of the David Marsden Award 2022 Dr. Susanne Knorr
May 30, 2022 - Prof. Tom Warner, Queen Square London: About the Research of Dr. Susanne Knorr, the David Marsden Award Winner 2022
May 28, 2022 - Dystonia Europe Digital Resources
May 24, 2022 - Dr Susanne Knorr Receives the David Marsden Award 2022
May 23, 2022 - Children’s Joy Rare Disease Day
May 19, 2022 - Press Release Cervical Dystonia Patient Journey
May 9, 2022 - First ever Patient Experience Map in Cervical Dystonia Reveals Multiple Barriers
May 6, 2022 - Dystonia Day 21 May 2022, Information and Program
May 6, 2022 - Dystonia Research Update
May 6, 2022 - Meet Jan from England: My Journey with Dystonia
April 30, 2022 - Annual Meeting in the Norwegian Dystonia Association
April 25, 2022 - Webinar Drugs and Dystonia
March 12, 2022 - Dystonia Europe stands in solidarity with Ukraine
March 10, 2022 - Winter Think Tank 2022
March 9, 2022 - Support for Ukrainian dystonia patients
December 19, 2021 - DBS study in Germany is still Recruiting Patients suffering from Cervical Dystonia
December 3, 2021 - Meet Johan Arnfinn Warvik from Norway: My Life with and without Dystonia
December 3, 2021 - Dystonia Physio Exercise HUB – A Digital Platform with Exercises for Cervical Dystonia
December 3, 2021 - Dystonia Awareness Month 2021
December 1, 2021 - Hello There – Meet Ulrike Halsch, President Dystonie und Du e.V, Germany
December 1, 2021 - Have you signed up for EFNA’s eLearning content yet?
November 25, 2021 - DDF and DE met in Copenhagen to plan for Dystonia Day 2022
November 15, 2021 - EurDyscover Annual Meeting Update
November 11, 2021 - The winner of the David Marsden Award 2021, Dr Martin Reich from Germany.
November 10, 2021 - DE President at the Celebration of the 30th Anniversary of the Spanish Dystonia Association
November 10, 2021 - Prof Tom Warner is elected President of the Association of British Neurologists
November 3, 2021 - EPF Congress – Digital Transformation of Health Care
October 28, 2021 - Class for Contact Persons held by Norwegian Dystonia Association
October 28, 2021 - Prof Tom Warner is elected President of the Association of British Neurologists
October 22, 2021 - Dystonia UK Activities 2021
October 20, 2021 - Book about Musician’s Dystonia, by Coralie Cousin: “The Day My Hand Stopped Playing: Treating Musician’s Dystonia: Aurélien’s story”
October 5, 2021 - Survey for patients that are diagnosed with Myoclonus Dystonia that have a confirmed mutation in the SGCE gene, and their families
October 3, 2021 - My Dystonia Story – Lizzy,s Story
October 2, 2021 - A.D.D.E.R. Action for Dystonia, Diagnosis, Education and Research
September 30, 2021 - Dystonia Day 2021
September 25, 2021 - Finnish Dystonia Days 2021 in Helsinki
September 18, 2021 - Meet Paula Happonen, Board Member of the Finnish Dystonia Association
September 18, 2021 - Second Italian National Dystonia Day
September 18, 2021 - Members meeting face to face in Norway
September 16, 2021 - MyDystonia App Ambassador Meeting
September 14, 2021 - One Neurology
September 12, 2021 - Medical Schools and Patient Involvement
September 10, 2021 - Emma, one patient who underwent DBS for dystonia and taught me a lesson
September 8, 2021 - Improving quality of life of people living with Dystonia
September 5, 2021 - Milan’s Clinic for movement disorders, Botulinum toxin and personalised rehabilitation plans
September 1, 2021 - Welcome to September and Dystonia Awareness Month 2021!
September 1, 2021 - The Deep Brain Stimulation Nurses Association
September 1, 2021 - “Dystonia can be overcome!” says Maestro Accardo
September 1, 2021 - Dr. Martin Reich Receives the David Marsden Award
June 19, 2021 - Dr. Martin Reich Receives the David Marsden Award 2021
June 18, 2021 - Achieving Health Equity After The COVID-19 Pandemic
June 10, 2021 - VOT2 Case Studies on Rare Diseases & Mental Disorders present findings at Synthesis Meeting on 8 June 2021
May 30, 2021 - Dystonia Europe Annual General Assembly 2021
May 30, 2021 - DMRF Launches First Scientific Journal Dedicated to Dystonia
May 25, 2021 - Spotlight on the Boston Scientific Foundation Europe (BSFE) – how Digital Health Initiatives are supporting patients across EMEA
May 25, 2021 - Entering a New Era of DBS Programming with Game-changing visualisation software
May 16, 2021 - NORWAY, Digital Dystonia Activities
May 13, 2021 - BELGIUM, Online meetings: A blessing in Disguise
May 13, 2021 - New Consensus Guidelines for Botulinum Toxin Therapy of Dystonia and Spasticity
May 13, 2021 - New Project: Dystonia Physio Exercise Hub
May 12, 2021 - ROMANIA, Constructive Activities During a Pandemic
May 8, 2021 - UK, Reach Out, Reach All
May 1, 2021 - Meet Jana Vičarová The Czech Republic
April 30, 2021 - ITALY, DystOlympicGames – A.R.D.
April 22, 2021 - My Dystonia Patient Story
April 22, 2021 - Dystonia Webinar Series
April 19, 2021 - Virtual EFNA General Assembly 2021
April 17, 2021 - EPF AGM 2021
April 5, 2021 - The Positive Twist a Podcast about Dystonia
April 5, 2021 - Dystonia Organisations Worldwide
March 30, 2021 - Finding Success in Career, Love and Life, in Spite of Living With Cervical Dystonia, Featuring Emmanuel Dalmas
March 22, 2021 - Patient Engagement in EU-Funded Brain Research Projects
March 22, 2021 - Medtronic Recieves CE Mark Approval for SenSightTM Directinoal Lead System for DBS Therapy
February 24, 2021 - The Importance of Physiotherapy and a Collaborative Approach to Treatment of Dystonia, With Physiotherapist Johanna Blom
January 27, 2021 - Ten Years of The David Marsden Award, an Interview With Recipients Prof. Mark Edwards and Asst. Prof. Niccolo Mencacci | The Positive Twist Podcast
December 23, 2020 - Living With a Neurological Disorder During The Covid-19 Pandemic, A Talk With Donna Walsh and Marjan Jahanshahi | The Positive Twist Podcast
December 16, 2020 - Newsletter Winter 2020
December 15, 2020 - Digital Activities: Dystonia Webinar Series & the Positive Twist Podcast
December 14, 2020 - First Italian Dystonia Day
December 14, 2020 - Botulinum Toxin Therapy: An Update
December 10, 2020 - New Artificial Intelligence Platform Diagnoses Focal Dystonia with High Accuracy in Less Than One Second
November 30, 2020 - Jump for Dystonia Winners 2020
November 25, 2020 - How Dystonia Europe Came to Be, and What a Life’s Work in Patient Advocacy Has Brought Alistair Newton | The Positive Twist Podcast
November 18, 2020 - Results of EFNA’s Survey on Stigma and Neurological Disorder
November 5, 2020 - My Dystonia Patient Story
November 3, 2020 - United Kingdom – Dystonia Awareness Month September 2020 Action for Dystonia, Diagnosis, Education and Research (A.D.D.E.R.)
November 1, 2020 - DBS in Dystonia patients: An interview featuring Profs. Ferreira and Coelho from University Hospital of Santa Maria, in Lisbon.
October 29, 2020 - Norway – Contact Person Training in Bergen Norway by NDF
October 28, 2020 - Making Dystonia Your Friend, with Monika Benson | The Positive Twist Podcast
October 26, 2020 - SURVEY – IMPACT OF COVID-19 ON NEUROLOGY SERVICE DELIVERY
October 22, 2020 - Webinar Series on Digital Health and Workshop by EPF
October 20, 2020 - Meet Pia, Chairwoman of the Danish Dystonia Association
October 10, 2020 - Specialized Physical Therapy Reduces Disability and Pain in Cervical Dystonia
September 30, 2020 - September is Dystonia Awareness Month
September 30, 2020 - Dystonia UK Digital Conference
September 24, 2020 - Global Advocacy in Neurology by EFNA
September 23, 2020 - How DBS surgery transformed a life, with Stephen Batey | The Positive Twist Podcast
September 18, 2020 - Denmark – Members Meeting Faroe Islands 2020
September 15, 2020 - Dystonia UK – Dystonia Awareness
September 9, 2020 - Launch of Dystonia Europe Virtual D-DAYs 2020: the Dystonia Webinar Series & the Podcast the Positive Twist
September 8, 2020 - From an Island Holiday Jump to a Jump for Dystonia Campaign
September 8, 2020 - PERCEPTTM PC Neurostimulator: A breakthrough on the way to adaptive DBS
September 3, 2020 - Join, Jump and Support Dystonia – September Awareness Campaign
August 28, 2020 - Webinar Series held by EPF on Digital Health
August 25, 2020 - Meet Thijs Vandewoude, Board Member and Contact Person Belgium
August 22, 2020 - Press release: September is Dystonia Awareness Month
July 28, 2020 - Professor Dressler on Botulinum Toxin Therapy in the Times of Corona
July 13, 2020 - Survey on Impact of COVID-19 Pandemic on Symptoms, Activity and Quality of Life in People Living with Dystonia.
July 10, 2020 - EFNA #BrainLifeGoals Project Grant Winners 2020
July 8, 2020 - Launch of European Dystonia Research Consortium: EurDyscover
June 30, 2020 - EFNA Webinar – Where´s Neurology? Influencing Covid Recovery Planning, Programmes and Policies’
June 23, 2020 - Increased prioritisation of neurological health called for in open letter to EU Commission…
June 21, 2020 - Dystonia Europe Virtual General Assembly 2020
May 25, 2020 - Spring Newsletter is here!
May 15, 2020 - Information Page on Dystonia & COVID-19 Launched
May 3, 2020 - EFNA #BrainLifeGoals Project Grants and #BrainLifeGoal Photo Competition
April 22, 2020 - Meet Dystonia Europe Board Member Catalina from Romania
April 13, 2020 - Living through Corona Virus Pandemic
April 12, 2020 - D-DAYs 2020 & 6th International Dystonia Symposium in Dublin postponed until 2021.
April 5, 2020 - UK – Dystonia Society- Reach Out, Reach All
April 3, 2020 - Italy – A.R.D. and COVID-19
March 30, 2020 - Dystonia Awareness Month 2020 – Relaunch Jump for Dystonia
March 28, 2020 - Dystonia Work during the Pandemic
March 10, 2020 - Participate in a Study by EFNA on Stigma and Neurological Conditions
February 28, 2020 - Rare Disease Day
February 20, 2020 - Busy week in Brussels
February 18, 2020 - Winter Think Tank 2020
January 31, 2020 - ERN-RND ePAGs Visiting Crona Clinic in Tübingen
January 28, 2020 - BS Foundation Grant OpportunitiesIn 2018, Boston Scientific, innovative medical solutions provider, launched its Boston Scientific Foundation for the EMEA region (Europe, Middle East and Africa) to contribute to society by supporting people in the communities. The mission of the Foundation is to support well-being through innovative solutions. Its strategic focus is to address issues of public interest in disease prevention or management, using digital or innovative solutions by: improving the health of individuals and communities with unmet needs. facilitating access to prevention and awareness programs. supporting research programs aimed at improving prevention or disease management. using innovative solutions such as apps, e-platforms, social media, optimizing impact on well-being. Should you be willing to know more visit http://www.bostonscientific.com/en-EU/about-us/corporate Monika Benson Executive Director Dystonia Europe
January 20, 2020 - Medtronic’s new DBS software aims for more personalised treatment of Movement Disorders like Dystonia
January 15, 2020 - Dystonia Facts – A new Video Series
December 18, 2019 - Predicting Antidystonic Effects of Deep Brain Stimulation (DBS) Using Probabilistic Maps
December 11, 2019 - Dystonia Patient Leaders Discuss Importance of Research and the Samuel Belzberg 6th International Dystonia Symposium
December 11, 2019 - Professor Pisani Receives The Bachmann-Strauss Prize for Excellence in Dystonia Research 2019
December 11, 2019 - Dystonia Europe News Winter 2019
December 10, 2019 - EBrains Meeting in Brussel 9-10 December 2019
December 1, 2019 - MyBrainNet
November 25, 2019 - 7th Edition of the Childrens Joy Association Event: Dystonia Rehabilition for Adults and Children in Romania
November 12, 2019 - Tyler’s Hope Think Tank at the University of Florida, USA
November 8, 2019 - My Dystonia 2.0
November 6, 2019 - MyDystonia Receives a Prize for Patients’ Empowerment
November 5, 2019 - Visit to a Dystonia Research Lab
November 2, 2019 - Health is a Shared Global Value
November 1, 2019 - 4th MyDystonia Ambassadors Meeting
October 28, 2019 - Advocating for Access to Neurology Treatment, Services and Supports
October 25, 2019 - Meet Dystonia Europe Treasurer and MyDystonia Ambassador Sissel from Norway
October 25, 2019 - Norwegian Dystonia Association, October Meeting in Ålesund.
October 13, 2019 - Opening of DBS Educational Platform in Leuven
September 30, 2019 - Dystonia Awareness Month 2019 & Dystonia Talks
September 21, 2019 - 7th Edition of the Childrens Joy Association Event: Dystonia Rehabilition for Adults and Children in Romania
September 20, 2019 - 7th Biennial Workshop on Dystonia and Parkinson’s Disease in Rome
September 10, 2019 - Summer Think Tank 2019
September 8, 2019 - Capacity building on Empowering Leadership and Positive Organisational Governance EPF – Second Meeting Bulgaria
September 1, 2019 - MDS Congress 2019 in Nice, France
August 30, 2019 - The Rebel Hand, Italy
August 30, 2019 - The 2019-2020 Edition of The Brain, Mind, and Pain Grant is Looking for Projects Which Tackle The Reduction of Stigma
August 23, 2019 - Cervical dystonia: a survey of patients’ experience with botulinum toxin type A injections
July 22, 2019 - EFNA co-hosts World Brain Day events in 4 EU capitals
July 22, 2019 - Poland, the second country in Europe with the Brain Plan
July 15, 2019 - Update on Research at Dystonia Europe Conference Dystonia Day 2019
July 9, 2019 - The Dystonia Europe Board 2019
July 9, 2019 - Dr. Anne Weissbach Receives the David Marsden Award 2019
July 8, 2019 - Dystonia Europe 26th Annual Conference in London 2019
July 5, 2019 - Deep Brain Stimulation and Dystonia: The Vercise™ Dystonia Registry
July 1, 2019 - Dystonia Session at European Academy of Neurology in Oslo
June 30, 2019 - EAN Congress 2019 in Oslo, Norway
June 29, 2019 - Dystonia Today – special session at the EAN Congress 2019!
June 25, 2019 - Dystonia Europe Summer News 2019
June 23, 2019 - Drive for Dystonia
June 5, 2019 - Meet MyDystonia Ambassador Gill from the UK
June 5, 2019 - New Research Ventures For Musician Dystonia
June 3, 2019 - David Marsden Award 2019 Update
May 25, 2019 - 4th International Congress on Treatment of Dystonia: For All who Care for People with Dystonia
May 23, 2019 - 4th International Congress on Treatment of Dystonia: For All who Care for People with Dystonia
May 16, 2019 - Dystonia Today – special session at the EAN Congress 2019!
April 30, 2019 - In Memory of Paolo Corsi – Past President of the Associazione per la Ricerca sulla Distonia in Italy
April 5, 2019 - EU Activities – The Book of Evidence
March 23, 2019 - Annual Meeting of The Associazione Per La Ricerca Sulla Distonia
March 18, 2019 - Living Well With Dystonia – Skiing from Border to Border- Rajalta Rajalle Hiihto
March 15, 2019 - Around Europe and Beyond – DRIVE for Dystonia
March 15, 2019 - Boston Scientific Foundation Grant Opportunities
March 11, 2019 - EU Activities – Brain Awareness by Sharing #brainlifegoals
February 28, 2019 - Dystonia Europe Founding President Receives Honour at Buckingham Palace
February 25, 2019 - Swedish Dystonia Association 25th Anniversary
February 15, 2019 - Winter Think Tank 2019
February 5, 2019 - Dystonia Europe Founding President Receives Honour at Buckingham Palace
January 3, 2019 - How To Access Innovative Therapies
December 16, 2018 - MyBrainNet – a Digital Platform for Brain Diseases
December 15, 2018 - EFNA Young People Survey
December 15, 2018 - New Way of Thinking (Finland)
December 15, 2018 - Heavily disabled – slightly mad!
December 15, 2018 - DBS and Dystonia: A Discussion with Dr Morgante
December 10, 2018 - Do not be afraid of society – educate!
December 5, 2018 - Non-Invasive Brain Stimulation In Dystonia
November 25, 2018 - MyBrainNet – a Digital Platform for Brain Diseases
November 22, 2018 - The 2nd Value Added Medicines Conference in Brussels
November 13, 2018 - Boston Scientific Foundation Launched
November 3, 2018 - The Dystonia Society and Dystonia Europe in Partnership for D-DAYs 2019 in London
October 20, 2018 - MyDystonia Ambassador Meeting – Dublin 2018
October 16, 2018 - The Future of Healthcare in the EU – Towards more sustainable healthcare organisations
October 1, 2018 - Dystonia Awareness Month 2018
September 29, 2018 - Dystonia Europe at the 23rd ESSFN Congress in Edinburgh
September 22, 2018 - Conference for Parents & Carers of Children and Young People with Dystonia (UK)
September 22, 2018 - EFNA Meetings in Brussels
September 9, 2018 - Romania – Report from a Busy Dystonia Awareness Month
September 1, 2018 - Welcome September – Dystonia Awareness Month – #DAM2018
August 1, 2018 - Interview with Professor Dirk Dressler
August 1, 2018 - President’s Message | Dystonia Europes 25th Anniversary
August 1, 2018 - Have you sent a Dystogram?
August 1, 2018 - DBS: Effective Therapy for Dystonia Patients
August 1, 2018 - Ireland | Book launch: Recommenced
August 1, 2018 - France | Lifting the Lid
August 1, 2018 - Meet Dystonia Europe Board Member Adam Kalinowski
August 1, 2018 - Dystonia Europe on Youtube
August 1, 2018 - Karl Speech App
July 22, 2018 - 25th Anniversary of DDG – the German Dystonia Association (Germany)
July 5, 2018 - Dystonia Europe Summer Think Tank 2018
June 30, 2018 - Didi Jackson | In Memoriam
June 15, 2018 - EFNA/BMP UPDATE | Summer 2018
April 25, 2018 - Norway | Norwegian Dystonia Association 25 years
April 22, 2018 - Norwegian Dystonia Association 25th Anniversary Celebration
April 18, 2018 - Neurology training in Lisbon – Value of Patient Perspectives and Preferences
April 17, 2018 - Abstract Book from Dystonia Europe 25th Anniversary Conference
April 14, 2018 - Scientific Report D-DAYs Brussels
April 14, 2018 - A HISTORY OF DYSTONIA EUROPE – THE FIRST 25 YEARS – 1993 -2018
April 14, 2018 - Report from the Dystonia Europe conference 12-14 April 2018
April 14, 2018 - Dystonia Europe 25th Anniversary Celebrations and D-DAYs 2018 in Brussels
April 14, 2018 - Germany | Dystonie-und-Du
April 12, 2018 - Visiting The European Parliament
April 8, 2018 - Italy | Run 4 Dystonia in Milan
February 28, 2018 - Romania
February 22, 2018 - Make Work Work – A Brain, Mind & Pain Workshop in the EU Parliament
February 10, 2018 - Dystonia Europe Winter Think Tank 2018
February 5, 2018 - Winter Think Tank 2018
February 3, 2018 - Annual Meeting of the Associazione Italiana per la Ricerca sulla Distonia
November 8, 2017 - Boston Scientific Master Debate in Paris
October 29, 2017 - 25th Anniversary of the Danish Dystonia Association
October 3, 2017 - French Dystonia Association AMADYS Celebrated its 30th Anniversary
May 31, 2017 - Dystonia Europe 24th General Assembly
May 16, 2017 - Dr. Niccolò Mencacci Receives the David Marsden Award 2017
May 16, 2017 - D-DAYs 2017 & ARD 25th Anniversary in Rome, Italy
March 27, 2017 - Governance Workshop & Dystonia Leaders Met in Dublin
March 13, 2017 - Norwegian Dystonia Members Annual Meeting 2017 in Trondheim
February 20, 2017 - 3rd Dystonia Europe Think Tank in Lund Sweden
January 21, 2017 - Dystonia Experts Meet at Toxins 2017 in Madrid
January 13, 2017 - ENVI Publication on “Living with a Neurological Brain Disorder – Taking Control of Your Life”
December 19, 2016 - Holiday Greeting & Dystonia Europe News Autumn 2016
December 17, 2016 - Powerful Patient Stories at the Medtronic Holiday Event
December 4, 2016 - Belgian Dystonia Association Meeting in Bruges
December 3, 2016 - Expert Summit on the Future of Deep Brain Stimulation in Würzburg
June 15, 2016 - Dystonia Europe at the First BioPontis Alliance Patient Integration Workshop in Europe
May 8, 2016 - The Third International Congress on Treatment of Dystonia
April 11, 2016 - D-DAYs 2016 in Oslo, Norway
March 19, 2016 - Ipsen and Dystonia Europe met in Paris
March 16, 2016 - Efpia Think-Tank for Patients and Representatives from the Pharmaceutical Industry
March 14, 2016 - Annual Meeting of Norwegian Dystonia Association
March 11, 2016 - Patients needed for study in France on the role of the striatal cholinergic system in the pathophysiology of DYT1 dystonia
March 9, 2016 - Dystonia Europe at Medtronic in Switzerland
February 24, 2016 - Brain Mind Pain Interest Group Meeting in the Parliament
February 9, 2016 - Under The Umbrella for Brain Disorders
January 31, 2016 - Third International Congress on Treatment of Dystonia
January 31, 2016 - 1st Dystonia Europe Think-Tank held in Lund Sweden
December 5, 2015 - Double Anniversary of the Austrian Dystonia Association
October 2, 2015 - David Marsden Award 2015
September 11, 2015 - Health Professionals in Slovenia learn about dystonia
July 6, 2015 - Dystonia Europe in Germany
June 21, 2015 - EFNA – Empowering Patient Neurology Groups
June 12, 2015 - Dystonia Europe at Boston Scientific US
May 31, 2015 - Global Expert Summit in Berlin
May 12, 2015 - Patient Perspective in Focus at Merz Global Leadership Meeting
April 23, 2015 - Medtronic Announces European Approval of Full-Body MR Conditional Deep Brain Stimulation Systems
March 28, 2015 - Dystonia Europe in Finland
March 14, 2015 - Jump for Dystonia T-shirts in Stock
January 19, 2015 - 5th Biennial Workshop on Dystonia: “Controversies in Dystonia and Parkinsonism”,Rome, May 29-30
January 19, 2015 - Dystonia Europe at the Toxins 2015 in Lisbon
December 23, 2014 - Season Greetings
December 7, 2014 - Merz JUMP for Dystonia Event in Frankfurt
December 3, 2014 - Dubrovnik Academy of Neurology 2015
November 29, 2014 - EU Commissioner on Health Jumps for Dystonia in the Parliament in Strasbourg
October 20, 2014 - Jump for Dystonia in the European Parliament
October 17, 2014 - Dystonia Europe D-DAYS 2014 & the 21st Annual Conference in Paris
July 21, 2014 - Workshop in Germany: Physiotherapy & Dystonia
July 15, 2014 - Great Success When the Medtronic Mission in Motion Team Organized Jump for Dystonia Event
June 13, 2014 - Dystonia Europe Board Meeting alongside MDS Congress in Stockholm, Sweden
June 2, 2014 - Dystonia Europe Attends EFNA General Assembly 2014 in Istanbul
May 19, 2014 - Merz Austria gathers Neurologists and Dystonia Europe at Annual Expert Meeting “Science on Top” in Kitzbühel
May 9, 2014 - Dystonia Europe Attended Physiotherapy Training in Norway
April 19, 2014 - Happy Easter from Dystonia Europe
April 9, 2014 - DE at the MDS in Stockholm
April 1, 2014 - DE Connecting with St Jude Medical
March 16, 2014 - Boston Scientific Creating Awareness with Jump for Dystonia
March 12, 2014 - Boston Scientific and Dystonia Europe Joining in a Jump for Dystonia
March 6, 2014 - DE & EPDA partner with Boston Scientific in advancing Dystonia & Parkinson Care
March 6, 2014 - Change of date: Meeting for Musicians with Dystonia in Munich Germany
March 2, 2014 - Dystonia Europe News Winter 2014 is here!
February 25, 2014 - Dystonia Europe Connecting with Medtronic
February 13, 2014 - Dystonia Europe Board met in Amsterdam
January 22, 2014 - New video: “I am David”
January 17, 2014 - Dystonia Europe at Dystonia Patient Event in Melbourne, Australia
December 24, 2013 - Merry Christmas and Happy New Year 2014!
November 26, 2013 - Dystonia Training School 2013
November 19, 2013 - Boston Scientific receives CE Mark approval for DBS in treating dystonia
November 13, 2013 - Dystonia Europe Connecting with Boston Scientific
November 10, 2013 - New video: Alistair on Living with Cervical Dystonia
October 31, 2013 - Dystonia Europe 20th Anniversary Conference & General Assembly
August 27, 2013 - The David Marsden Award Winner 2013 selected!
October 20, 2011 - The David Marsden Award Winner 2011
October 19, 2010 - SIP 10th Anniversary Conference
September 1, 2009 - The David Marsden Award Winner 2009
September 1, 2007 - The David Marsden Award Winner 2007
September 1, 2005 - The David Marsden Award Winner 2005
September 1, 2003 - The David Marsden Award Winner 2003

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