February 20, 2017

3rd Dystonia Europe Think Tank in Lund Sweden

Last week of January the 3rd Think Tank was held in Lund, Sweden.
The Dystonia Europe Board had come to Lund earlier in the week for the first board meeting of the year to plan and discusse this year’s activities and projects.
Tink Tank participants are the Board members and representatives from our Platinum sponsors. For 2017 they are the two medical device companies: Boston Scientific and Medtronic, and the two botulinum toxin manufacturers: Ipsen and Merz. The theme of the meeting was communication and we discussed our different ways of communicating with you: on-line and face-to-face.

The main on-line communication channel and the HUB of Dystonia Europe is our website with close to 1000 unique visitors per month. If you have not checked it out please take a look. There you find information about our organisation: board members and statutes; sponsors and project, activities and events and much more. On the Latest News section you always find the latest that has happened within the organisation.
From the website you can connect with our social media channels: Twitter, Youtube, Instagram and Facebook. Here you can follow our day-to-day activities and easily connect with us.
From our website you can also connect with MyDystonia – our digital dystonia diary for dystonia patients. Here you can monitor symptoms, treatment and daily activities in order to create reports which can facilitate patient physician communication and treatment outcome. If you have not created your account yet do it today!

Soon to be launched is our David Marsden Award website which will specialize on the Award and David Marsden, the most recent Winner and past winners, together with our sponsor making it possible for us to continue to work and develope this distinguished Award.

The newsletter Dystonia Europe News is issued twice a year: in June and December. Here we try to collect interesting articles on research and activities taking place within Dystonia Europe and our member organisations across Europe.

Meeting our members and partners face-to-face is very important to us as well. At our annual D-DAYs we offer interesting presentations with top dystonia experts and the opportunity for networking and fruitful discussions, sharing best practise and development. We also take part in meetings and congresses around Europe such as EAN and MDS. When possible we also try and attend national dystonia meetings of our member associations.

The next, and also the 4th Think Tank, will take place in Lund, Sweden, beginning of July.