November 8, 2019

My Dystonia 2.0

As you’ve probably read before, Dystonia Europe is currently working on the new MyDystonia. At the moment we are busy creating the new designs, so the new APP will have a brand new look and feel. We think this new design will be more appealing to use and also makes it easier to make new entries in the diary.

The new MyDystonia will have all the features you already know, but we will also be able to add new features in the future. This is one of the reasons we wanted to create a new MyDystonia, we want to add functionality to make the APP more interesting and make it more valuable for you.

Of course our Ambassadors are also involved in this project. During our last meeting in Newcastle in October this year we received some great feedback which is being processed by the design team. Our Ambassadors will be much easier to contact with the new MyDystonia. You will be able to find the Ambassadors directly inside the APP with their names and photos and send them personal messages directly from within the APP. You can always reach them with questions about the APP and if you have suggestions or new ideas for the APP, you can contact them directly.

Our Ambassadors are part of the larger User Focus Group, a group of people outside of Dystonia Europe, who have expressed an interest in testing the new APP before it gets launched. If you would like to be part of this User Focus Group and are willing to test the new app and provide us with feedback, please join our testing group. We are also looking for people who are willing to translate the new APP to your own language.

If you would like to translate the APP or join our User Focus Group, please send an email to Merete at and she will put you on the list.

We aim to have the APP ready for testing in the beginning of 2020 and we should have all translations ready during spring. If you are part of our testing group, you will have a sneak preview in the beginning of 2020 and you will have to ability to influence the final result of the APP before the official launch. The official launch is during spring of 2020 and we will post messages about this on our website, social media and the website. If you would like to receive an email when we launch the new MyDystonia, please send an email to Merete at and she will send you an email when we launch.

Eelco Uytterhoeven

MyDystonia Project Manager