Last week over 100 Merz leaders from 20 countries were gathered in Mainz, Germany for the Second Merz Leadership Summit. Merz is a family owned German company manufacturing botulinum toxin. The 2-day meeting opened with focus on the Customer & Patient Perspective. Dystonia Europe Executive Director Monika Benson, who is a dystonia patient herself, shared her experiences and insights during a 45-minute interview on stage with Yannick Grosskreutz. Her key messages to the audience were: more awareness among the general public and the medical profession to combat stigma and speed up diagnosis and access to treatment; and more research is needed to improve treatment and ultimately to find a cure.
She encouraged the audience to be proud of what they do and she said: “If it weren’t for you and this product many tens and perhaps hundreds of thousands of dystonia patients all over the world would not be able to enjoy a reasonable quality of life.”