Last year Dystonia Europe was one of the first recipient of the BMP (Brain, Mind and Pain) grant from Pain Alliance Europe and Grünenthal for our innovative project MyBrainNet.
This is a platform that allows us to create multiple apps and connect these to one platform, where all data is collected centrally. This central platform will allow us to publish new apps at a much lower cost than otherwise would be possible.
We want to share this platform with other neurological European patient organizations, so they can have their own diary for their members. This will bring together a lot of interesting information which can be used in research projects, providing unique data. Of course we value the privacy of our app users, so only data of people who have given their consent will be used for research.
If you are interested in developing an app – disease diary – let us know. Send an e-mail to Eelco Uytterhoeven at firstname.lastname@example.org