Monika was elected president of EDF, now Dystonia Europe, in 2007. She was re-elected for a second term in 2010. Monika stepped down as President in 2013 since she had served the maximum period of 6 years. She took over as Executive Director after Alistair Newton’s retirement. Monika has cervical dystonia and is also a board member of the Swedish Dystonia Association. Monika has been working as a coordinator of work-shops, courses and lectures at a school in Lund, Sweden.