April 30, 2023

Board Meeting Update

Dystonia Europe had an online board meeting using zoom on the 20th January and another (also on zoom) on the 19th April.

On the 28th February we had a board meeting face-to-face in Brussels. Some topics on the agenda were the Video Awareness Project and the upcoming Dystonia Days and Annual General Assembly on the 2nd and 3rd June, which will be held in Dublin, Ireland alongside the 6th Samuel Belzberg International Dystonia Symposium 1st – 3rd June.

Other information and discussions were on topics such as Dystonia & Diet Survey, Cervical Dystonia Patient Journey, the Positive Twist Podcast, the Dystonia Physio Exercise Hub, the David Marsden Award, which is now given yearly to promote research, and more. The winner of the David Marsden Award will be announced this summer and we will have an article on this in our next newsletter.

As well as having a very full and productive meeting it was lovely to see each other face-to-face again.

Back row from left: Jukka Sillanpää, Merete Avery, Eelco Uytterhoeven, Catalina Crainic.
Front from left: Sissel Buskerud and Monika Benson


Merete Avery Operations Manager