Here is a list of books and other resources on dystonia, some written by Medical Authors and others by people living with dystonia. Most books can be ordered at Amazon, and some maybe also at your local book store or with your national bookstore online. There is a link to each book that will for most books take you to Amazon where you can order the book.
Disclaimer:
This is a list of some books on dystonia. Some are written by Doctors and may have many medical terms. Others are written by patients and as dystonia can manifest in many different ways, what is beneficial for some patients may not apply for all dystonia patients. If you want to purchase any of these books, we encourage you to read reviews on Amazon when available or do other research.
Dystonia Europe do not promote these books, but simply try to share books and resources that are available on dystonia.
Dystonia Europe do not sell any of these books but have a limited amount of “Lifting the Lid” by Dr. Brigitte Girard, free of charge, €15 for shipping and handling.
Author: Professor Brigitte Girard
Prof. Brigitte Girard, an ophthalmologist, has been treating patients suffering from blepharospasm for more than twenty years.
This book explores the various facets of Blepharospasm and reports some real-life cases. Patients will recognize their own experiences. This book is both for patients and medical professional.
If you would like a copy of this book send an email to Dystonia Europe: sec@dystonia-europe.org
The book has no cost, but we charge €15 for shipping and handling. We have a limited number of books in English.
Authors: Professor Dirk Dressler; Professor Eckart Altenmuller; Professor Joachim K. Krauss.
This is a comprehensive reference for neurologists, neurosurgeons and physical therapists on the treatment of all dystonias in children and adults.
You can purchase Treatment of Dystonia here
Author: Daniel Truong MD
This empowering and encouraging resource and tool, written for both individuals with chronic condition and their families, provides an overview of a variety of dystonias, (including cervical dystonia, spasmodic dysphonia, and writerÌs cramp) and the breadth of treatment options available, as well as practical advice for improving quality of life.
Written by three acclaimed neurologists, Living Well with Dystonia will help you:
Understand your specific dystonia and how it progresses
Address the hidden symptoms such as social embarrassment.
You can purchase Living Well with Dystonia here
Author: Vadim Belenky, Olga Klicenko, Andrei Stanzhevsky
Biochemical and PET Studies, experimental, acupuncture and homeopathic.
The authors give the readers their observations on the pathology and treatment of the debilitated disorder of central nervous system – dystonia. The tendency towards increase of serotonin exchange had been revealed, and antiserotoninergic agent Ondansetron, HT – 3 antagonist, proved to be effective, given once in three months. The descripency of PET studies in dystonia is due to prolong drug treatment, and ourdata of 18F FDG PET study of dystonic patients suggest hypometabolism of some cortical and subcortical areas in the disorder. For acupucture treatment of dystonia we applied Nakatani and Akabane tests and the later revealed deficiency in great yan junction, i. e. small intestine and urinary bladder vessels, and the former redundancy in kidney vessels. Our patients benefited from acupunctre treatment aimed to correct a forementioned energetic dysbalance. We used Nakatani test for matching homeopathic remedies as alternative to Foll’s method Homeopathic remedy made from patient’s own DNA proved to be effective both in Nakatani testing and in clinical application in dystonia treatment.
You can purchase the book on Torsion Dystonias here
One of the co-authors: Tracey McCann who has dystonia
This is a book with different stories, and mostly not on dystonia, however one of the co-authors are Tracey McCann, who have dystonia.
You can purchase We Summit Together here
Author: Monty Raymond
Monty Raymond, husband of Margot who has dystonia, released a fiction novel called Life and Music inspired by Margot’s dystonia journey.
It seemed like a great way to spread dystonia awareness far and wide. Margot was a successful orchestral musician and had to give up music due to cervical dystonia.
A portion of profits will be donated to dystonia research and support. The book classification is ‘recommended for mature readers’. The best search term for the book is ‘Monty Raymond’ (the author).
Margots husband also made the short film Dystonia about her story: Dystonia by Peter at Corgipawfilms – YouTube and the subtitled version: DYSTONIA (with subtitles) by Peter at Corgipawfilms (CWCFILMS) in Australia – YouTube
The book is available worldwide at one link that takes you to many stores: https://books2read.com/Life-and-Music.
Author: Tracey McCann
An inspirational book written by Tracey who has dystonia.
Tracey Ellen Maria was born on the 10th of February 1988. She had lived a relatively ‘normal’ suburban live up until the age of 8 when she was suddenly struck with a life changing disability. After experiencing years of psychological trauma via the physical and mental pain that she underwent from an early age, Tracey is now a changed woman, a woman on a mission to tell her story and inspire change within the lives of each person with whom she meets. She is now an Author, Life Coach and Public Speaker
You can also read more about the book here, https://dystonia-europe.org/media/newsletter/2018-summer/book-launch-recommenced/
You can purchase Recommenced here
One of the co-authors: Tracey McCann who has dystonia
Tracey is living a successful, happy and free life, because she made a choice to continue going on, she chose to continue being her best. She also assists others in gaining that much needed self-confidence, and also, to live the life that they deserve.
Empowering Abilities is a collection of stories written by 14 individual authors most of whom have a physical disability.
In this book there are 14 chapters in total (1 for each author) which all have a specific theme.
The below is a brief summary of this book.
http://www.dystonia.ie/empowering-abilities-book/
You can purchase Empowering Abilities: Written by “The Voices of the Voiceless” here
Author: Coralie Cousin
Book about Musician’s Dystonia.
Dystonia Europe is pleased to present the new book by Coralie Cousin, a French therapist who has been close to our Medical and Scientific Advisory Board for many years. We are delighted to welcome this book, as musician’s cramp is rarely documented or reported.
With a degree in physical therapy, Coralie Cousin has been specializing in the rehabilitation of the musician’s hand dystonia for twenty years. Coralie Cousin has set up her medical practice: “Kiné des Musiciens” in Paris, France and has treated and advised more than 6000 musicians.
You can purchase The Day My Hand Stopped Playing here
Author: Tom Seaman
https://tomseamancoaching.com/
Tom Seaman has dystonia and the book is written from a patients view. You will find information for those newly diagnosed, as well as those who have been living with dystonia for years. Tom’s perspective as a long time dystonia patient is offering coping skills, healthy living strategies. He also provides practical information for emotionally adjusting to the diagnosis and subsequent lifestyle changes, and how to live in the world with something “different.” Testimonials from other patients provide additional perspective.
You can purchase Diagnosis Dystonia here
Author: Joaquin Farias
Joaquin Farias has a doctorate in biomechanics, as well as master’s degrees in neuropsychological rehabilitation, psychosociology, and ergonomics.
You can purchase How to Induce Neuroplasticity here
