Tel: +44 020 7793 3659
Dystonia UK (previously The Dystonia Society) was founded in 1983 and the number of members is now over 3000. The Board is supported by a Medical Advisory Board and the Central Office is managed by a Chief Executive.
Numerous brochures, leaflets and a regular newsletter plus telephone support are available for the members. Regional self-help-support groups are active all over the country.