About us

Dystonia Europe is a non-profit organisation registered in Belgium and serving the needs of everybody with an interest in dystonia.

The Dystonia Europe Vision is better quality of lives for people living with Dystonia in Europe, while supporting the search for a cure.

We will achieve our vision through the following core activities:

• Raise awareness and be the leading voice in Europe on the impact of Dystonia.

• Share the knowledgeprovide the latest information and resources for our members and also be the source of information for the other stakeholders.

• Connect people with Dystonia, member organizations, healthcare professionals, European policymakers and the treatment industry to close the gaps of today’s dystonia treatments.

• Foster training and education and educate multidisciplinary teams and stakeholders along the dystonia journey to optimize care and improve quality of life.

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