PRESS RELEASE: Brussels, 22 August 2020 SEPTEMBER IS DYSTONIA AWARENESS MONTH – JUMP FOR DYSTONIA TO SUPPORT, SHARE, WIN On September 1 Dystonia Europe is relaunching their successful awareness campaign Jump for Dystonia of 2015 with a new twist, asking their followers what kind of jumper they are. Dystonia Europe is asking everyone to celebrate…
Professor Dressler on Botulinum Toxin Therapy in the Times of Corona
We talked to Prof Dressler how the Corona crisis has affected dystonia patients in Germany but also in other countries. Q: Professor Dressler, the Corona crisis has severely affected botulinum toxin therapy. What happened? Dressler: During the Corona crisis the access to many routine medical services were restricted or even completely blocked. This also happened…
Survey on Impact of COVID-19 Pandemic on Symptoms, Activity and Quality of Life in People Living with Dystonia.
Associate Professor Lynley Bradnam, Dr Rebecca Meiring, Dr Silmara Gusso, research assistant Tia Lindbom, Department of Exercise Sciences, University of Auckland, invite you take part in an anonymous survey investigating the impact of COVID-19 pandemic on symptoms, activity and quality of life in people living with Dystonia. You are eligible to take part if you have…
EFNA #BrainLifeGoals Project Grant Winners 2020
The #BrainLifeGoals campaign is an initiative of the European Federation of Neurological Associations (EFNA) that aims to raise awareness of the impact of neurological disorders. EFNA started an initiative #BrainLifeGoals Project Grant last year, to support work on one of the EFNA’s advocacy themes. In 2019, in support of this campaign, EFNA awarded grants of…
Launch of European Dystonia Research Consortium: EurDyscover
On Tuesday 7 July the kick-off meeting of the EurDyscover Consortium took place on Zoom. Coordinator is the University Hospital of Würzburg, Neurology department, and Jens Volkmann and Chi Wang Ip. Other partners in the consortium are: • Antonio Pisani, IRCCS Fondazione Santa Lucia, Laboratory of Neurophysiology and Plasticity, Rome, Italy • Albino Oliveira-Maia, Fundação…
