September 9, 2020

Launch of Dystonia Europe Virtual D-DAYs 2020: the Dystonia Webinar Series & the Podcast the Positive Twist

Our most important event and activity every year, our annual meeting the D-DAYs Conference 2020 was cancelled due to the Covid-19 pandemic. Very early we realized this would greatly affect the work of Dystonia Europe. With no D-DAYs we would not: •  meet our members and connect with them and learn about their national activities…

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September 5, 2020

Launch of European Dystonia Research Consortium: EurDyscover

On Tuesday 7 July the kick-off meeting of the EurDyscover Consortium took place on Zoom. The coordinator is the University Hospital of Würzburg, Neurology department, and Jens Volkmann and Chi Wang Ip. Other partners in the consortium are: • Antonio Pisani, IRCCS Fondazione Santa Lucia, Laboratory of Neurophysiology and Plasticity, Rome, Italy Albino Oliveira-Maia, Fundação…

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August 22, 2020

Press release: September is Dystonia Awareness Month

PRESS RELEASE:  Brussels, 22 August 2020 SEPTEMBER IS DYSTONIA AWARENESS MONTH – JUMP FOR DYSTONIA TO SUPPORT, SHARE, WIN On September 1 Dystonia Europe is relaunching their successful awareness campaign Jump for Dystonia of 2015 with a new twist, asking their followers what kind of jumper they are. Dystonia Europe is asking everyone to celebrate…

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July 13, 2020

Survey on Impact of COVID-19 Pandemic on Symptoms, Activity and Quality of Life in People Living with Dystonia.

Associate Professor Lynley Bradnam, Dr Rebecca Meiring, Dr Silmara Gusso, research assistant Tia Lindbom, Department of Exercise Sciences, University of Auckland, invite you take part in an anonymous survey investigating the impact of COVID-19 pandemic on symptoms, activity and quality of life in people living with Dystonia. You are eligible to take part if you have…

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