December 19, 2021

DBS study in Germany is still Recruiting Patients suffering from Cervical Dystonia

A randomized, sham-controlled trial of pallidal neurostimulation versus botulinum toxin treatment for cervical dystonia (StimTox-CD) Deep brain stimulation (DBS) of the internal globus pallidus is highly effective for various forms of primary dystonia, but is currently considered a last resort therapy for severe and medication-refractory segmental or generalized dystonia according to treatment guideline. The first-line treatment…

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December 3, 2021

Dystonia Physio Exercise HUB – A Digital Platform with Exercises for Cervical Dystonia

Research has shown that Botulinum toxin injections (BoNT-inj) combined with physiotherapy provide good benefit for most people with cervical dystonia (CD).  Advanced treatment with Deep Brain Stimulation (DBS) also requires physiotherapy. Repetition of exercises is important to influence brain remodelling and achieve long-term improvements. Exercises should be individualised according to the pattern, nature and   problem…

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December 3, 2021

Dystonia Awareness Month 2021

Another successful Dystonia Awareness Month has taken place. It is amazing to see all the dystonia awareness activities taking place across Europe and around the world. There were special dystonia days and fund raising activities organised by our member associations. Special social media content with information and education on dystonia was created and shared. In…

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