July 1, 2022

EPF AGM 2022

On the 23rd April, EPF held their Annual General Meeting online. Dystonia Europe is a member of EPF (European Patient Forum). An opening speech was given by Marco Greco, EPF President and Anca Toma, EPF Executive Director. EPF is the leading voice of patient organisations in Europe and promotes patient advocacy. They bring together people,…

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June 22, 2022

AMADYS, France: Workshop on Focal Dystonia: Treatment and Rehabilitation

Since 2018, we have been organising training sessions on the rehabilitation of cervical dystonia and function (writer’s cramp) given by Dr. Jean-Pierre Bleton, in the regions, in person, by communicating with local medical professionals and their federations or health care institutions. We wanted to organise a session for the Paris area and Dr. Bleton had…

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June 10, 2022

Finnish Dystonia Association Spring Meeting in Wintery Joensuu

People from the left: Board members Martti Ketonen and Leea Sihvo-Rajala, local volunteers Paula Hiltunen and  Tuula Hirvonen (in front), board member Paula Happonen, and  president Jukka Sillanpää, secretary Taina Lehtinen, and local volunteers Jaana Vainio and Aarno Komu.  Photo: Tytti Svetloff, Finnish Parkinson’s Association After two years with restrictions to assemble due to COVID-19 pandemic,…

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