This campaign was mainly focused on the diagnosis of cervical dystonia. People from the Czech Republic and other countries who have been diagnosed with cervical dystonia raised their ‘Heads up’  to raise awareness of this neurological disorder and its difficulties. The end of this campaign was crowned by the launch of a book with the…

AMADYS, the French association for dystonia patients, gathers its volunteers every two years for a face-to-face day. This year it was January 24th in Paris. Volunteers include our regional delegates, specialists with specific missions (social networks, etc.), and board members. Guest speakers may include specialists on medical or care issues relating to dystonia and children’s…

The 11th Congress of Parkinson and Movement Disorders Society was held in Rome from May 14th to 16th. This Society was founded with a specific attention to Parkinson’s disease; over the years its interests have widened to dementia and movement disorders, stepping into a role of support and reference for patients and caregivers. The Congress…

Saturday 26th April 49 members of NDF (Norwegian Dystonia Association) gathered for a member meeting and the Annual General Assembly at Quality Hotel Olavsgaard at Skjetten, just outside Oslo, Norway. Vice President of the local association NDF Agder, Randi Corneliussen started the meeting with a welcome song called “Spring has arrived” , a great initiative…