To celebrate World Brain Day (July 22nd), the European Federation of Neurological Associations [EFNA] co-hosted events in four European capitals – Brussels, Bucharest, Dublin and Warsaw! The aim of these events was to hear what matters most to neurology patients in terms of their health outcomes – #BrainLifeGoals – and to discuss how this can…
Drive for Dystonia
My story with Dystonia started in February last year. It came suddenly, without any signs of warning. My neck became stiff and my head started to turn to the side. First there was disorientation – what’s happening to me? Why can’t I control myself? Why is my body not listening to me? Work and everyday life…
Around Europe and Beyond – DRIVE for Dystonia
My story with Dystonia started in February last year. It came suddenly, without any signs of warning. My neck became stiff and my head started to turn to the side. First was there was disorientation – what’s happening to me? Why can’t I control myself? Why is my body not listening to me? Work and…
Heavily disabled – slightly mad!
Germany: Heavily disabled – slightly mad! The original title in German is “Schwer behindert, leicht bekloppt” and it is a book about a special friendship. Author Bernd Mann says: “The fear of healthy people towards disabled persons is as large as the fear of handicapped against the healthy ones. It is the fear of not disabled…
Romania – Report from a Busy Dystonia Awareness Month
The Romanian Association for patients with dystonia: Asociata Children’s Joy organized on the 8 th of September, the 6 th edition of the National Conference dedicated to patients who suffer from various types of dystonia, their families, and specialists who work in this field. The event took place during dystonia awareness month. The event included…
