Hello everybody in Europe from Tuscany, Italy! I’m Annalisa and I have been suffering from cervical dystonia since 1995, when I was 28 years old. Most of you will probably know what cervical dystonia or spasmodic torticollis is. It affects the muscles of your…

What is your name? My name is Paula Happonen.                   What are the benefits of working within a patient organisation? By volunteering I am able to contribute to well-being of other people who live with dystonia. I am able to provide and receive support. I have made…

Members of a local group in The Norwegian Dystonia Association (NDF) gathered for a 2 day meeting on August 24th, in the beautiful Rømskog SPA outside Oslo, Norway. This was the first face to face meeting since the pandemic started and the members were very pleased to meet again. The program: Information of what NDF…

MyDystonia is an electronic diary created for people with dystonia. This diary enables patients to monitor their symptoms and how those symptoms affect daily life. Patients can share insights with their doctor to discuss how to optimize their treatment approach. After years of experience and feedback from users, app ambassadors and advisors, in May 2021…

Workshop 29th July on One Neurology. One Neurology is an initiative that aims to unite and strengthen neurology-related groups to collaborative advocacy, action and accountability for the prevention, treatment and management  of neurological disorders worldwide. EFNA (www.efna.net) together with the European    Academy of Neurology (EAN), founded this patient-driven initiative, which includes a multi-stakeholder global partnership. Neurology is…