Yannick Paredis was born on March 7, 2004, appearing to be a perfectly healthy baby. His early childhood was filled with the joys of playing, learning, and growing. However, when he was five years old, subtle but alarming signs began to emerge. His teacher noticed that he struggled with his pen grip, and his parents…
Art for Dystonia – The Power of Courage and Vulnerability through Film Photography and Music
Timișoara hosted ART FOR DYSTONIA between 2nd and 9th October last year, a unique artistic and humanitarian project dedicated to supporting individuals affected by Dystonia. The event organized by the Children’s Joy Association was a success, bringing the beauty and authenticity of film photography and music to the forefront. The exhibition provided visitors with an…
Meet Donald MacPhee – My Dystonia Story
I was 23 when the first signs of dystonia, in my case spasmodic torticollis, appeared. I was living in León, Spain, working as an English language assistant in a secondary school by day and an English language tutor by night. All was well until one day, walking down a street, I felt a small…
Hello There – Meet Lieva from Belgium
What is your name? Lieva Van Langenhove What are the benefits of working within a patient organization? The dystonia association offers recent information about symptoms and treatments and recent advancements. In Belgium there is a good link with academia, so we regularly can meet researchers wanting to explain their work and talk with us about…
Dystonia Europe and Childhood Dystonia Awareness UK
Last January we were planning the webinar on Children, Dystonia and DBS. Dystonia Europe was then put in touch with Adrian Hutchings from Childhood Dystonia Awareness UK support group. We connected and discussed the possibilities of how we can work together to advance the knowledge and understanding of children affected by dystonia. As well as…
