Dystonia Europe announces, with great sadness, the passing of our former President, Didi Jackson on 14 February, 2018. The 1980s and early 1990s were the early days of dystonia becoming better-understood by the medical profession, and it was very difficult for patients to obtain good information and medical advice. Didi received her own diagnosis and…
DBS: Effective Therapy for Dystonia Patients
Interview with Professor Andrea Kühn from the Charité, University Hospital in Berlin, Germany The Charité University Medicine in Berlin is Europe’s largest university hospital and offers a comprehensive treatment spectrum at the forefront of medical care for patients from all over the world. One of the clinic’s focuses is the treatment of patients with movement…
Norway | Norwegian Dystonia Association 25 years
Norway The week after the Dystonia Europe 25th Anniversary events, NDF, the Norwegian Dystonia Association, held its 25th Anniversary celebration and Annual General Assembly at hotel Olavsgaard, just outside of Oslo. 75 dystonia patients and family members from across Norway had come to the event. Saturday morning, after registration, NDF Chairman Johann Arnfinn Warvik, welcomed…
Annual Meeting of the Associazione Italiana per la Ricerca sulla Distonia
On February 3, 2018 A.R.D. held its annual meeting, hosted by Professor Alberto Albanese at the “Istituto Ospedaliero Humanitas” in Rozzano near Milan. Usually our annual meeting is divided into two parts. During the first part in the morning some speakers illustrate some different aspects of dystonia. After the lunch break the General assembly for…
Italy | Run 4 Dystonia in Milan
On April 8 the 18th edition of the Milan Marathon took place on a warm and sunny spring Sunday. It consisted of 2 different races, with the same itinerary of 42 Km. : one classic agonistic marathon and a relay race organized by Charity Program, a great solidarity project created and supported by Milano Marathon…
