Interview with Professor Andrea Kühn from the Charité, University Hospital in Berlin, Germany The Charité University Medicine in Berlin is Europe’s largest university hospital and offers a comprehensive treatment spectrum at the forefront of medical care for patients from all over the world. One of the clinic’s focuses is the treatment of patients with movement…
Annual Meeting of the Associazione Italiana per la Ricerca sulla Distonia
On February 3, 2018 A.R.D. held its annual meeting, hosted by Professor Alberto Albanese at the “Istituto Ospedaliero Humanitas” in Rozzano near Milan. Usually our annual meeting is divided into two parts. During the first part in the morning some speakers illustrate some different aspects of dystonia. After the lunch break the General assembly for…
Italy | Run 4 Dystonia in Milan
On April 8 the 18th edition of the Milan Marathon took place on a warm and sunny spring Sunday. It consisted of 2 different races, with the same itinerary of 42 Km. : one classic agonistic marathon and a relay race organized by Charity Program, a great solidarity project created and supported by Milano Marathon…
Ireland | Book launch: Recommenced
My name is Tracey McCann and I was born in Dublin, Ireland in 1988. I was a healthy and able-bodied child, who upon birth showed no indications of ever having anything other than a ‘normal’ life. However, when I was 8 years old my life took a massive turn when I was diagnosed with…
Germany | Dystonie-und-Du
On October 14 2017, former members of the self-help group Mannheim / Ludwigshafen decided to found a new SHG: the group Rhein / Neckar. At the same time, the plan to create a new association for people suffering from dystonia matured. Finally, on November 11, Evelyn & Volker Kreiss, Elke & Horst Roth, Susanne &…
