Since 2018, we have been organising training sessions on the rehabilitation of cervical dystonia and function (writer’s cramp) given by Dr. Jean-Pierre Bleton, in the regions, in person, by communicating with local medical professionals and their federations or health care institutions. We wanted to organise a session for the Paris area and Dr. Bleton had…
Finnish Dystonia Association Spring Meeting in Wintery Joensuu
People from the left: Board members Martti Ketonen and Leea Sihvo-Rajala, local volunteers Paula Hiltunen and Tuula Hirvonen (in front), board member Paula Happonen, and president Jukka Sillanpää, secretary Taina Lehtinen, and local volunteers Jaana Vainio and Aarno Komu. Photo: Tytti Svetloff, Finnish Parkinson’s Association After two years with restrictions to assemble due to COVID-19 pandemic,…
Meet Martina Kühn, Chairwoman Dystonie Förderverein Deutchland e. V. Germany
What is your name? My name is Martina Kühn What are the benefits of working within a patient organisation? My mother has blepharospasm among other issues. Even though I do not have dystonia myself, I’ve come to realize over time how difficult living with dystonia can be in certain situations. More than 14…
Dystonia Physio Exercise Hub Project
The first team meeting for the international launch of the Dystonia Physio Exercise Hub took place at the end of March. Physiotherapist Johanna Blom from the University Hospital of Skåne in Malmö, Sweden is initiator and owner of the project. After a successful launch of the exercise platform in Sweden last November, it was time…
The new Boston Scientific Visualisation Software: Helping to Provide Personalised Deep Brain Stimulation Treatment for Dystonia Patients
For patients living with dystonia, deep brain stimulation (DBS) is an established, safe and effective treatment option.1 DBS is a surgical procedure during which two thin electrodes are inserted into the brain and conneted to a stimulator via an extension in the chest or abdomen.2 The treatment works by delivering targeted electrical pulses to the…
