November 2, 2022

Publication on Dystonia: Dystonia Management across Europe within ERN-RND: Current State and Future Challenges

Liesanne M. Centen,#1,2 David Pinter,#3 Martje E. van Egmond,1,2 Holm Graessner,4 Norbert Kovacs,3 Anne Koy,5Belen Perez-Dueñas,6 Carola Reinhard,4 Marina A. J. Tijssen,1,2 and  Sylvia Boesch7 Background Since the first European-wide evaluation of dystonia management in 2016, several efforts have been made to improve dystonia-care. One of these was the development of the Dystonia Disease Group as a part of the European Reference Network for…

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September 28, 2022

A randomised double-blind controlled study of Deep Brain Stimulation for dystonia in STN or GPi – A long term follow-up after up to 15 years A summary

Deep Brain Stimulation (DBS) is a neurosurgical treatment, where electrodes implanted in deep nuclei in the brain, via stimulation, normalises output in motor networks affected by movement disorders. DBS in dystonia has proven a safe and effective treatment, but variable results have been presented depending on the types of dystonia and precise targeting in the…

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September 20, 2022

Presentation of the DMA at the EAN 2022 Basal Ganglia Club Session

European Academy of Neurology is a non-profit, independent organisation representing more than 45,000 members, as well as 47 European national societies. The 8th Congress of the EAN took place in Vienna in June this year. EAN Congress is one of the biggest neurological events in Europe. This year 380 lecturers and 5300 onsite participants took…

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August 10, 2022

Dystonia and Relationships: Preliminary Survey Results

In addition to the well-known motor features of people with dystonia, also many have been reporting non-motor symptoms. Functional impairment, pain, social  embarrassment, anxiety, social phobia, and stigmatisation seem particularly common and have a clear impact on the quality of life. This might considerably influence self-confidence and could, therefore, have an impact on relationship and…

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