January 3, 2019

MyDystonia Ambassador Meeting – Dublin 2018

MyDystonia is an application created by Dystonia Europe for people with dystonia to monitor their health condition and daily routines. This electronic diary documents symptoms and disease impact according to medication. This tool can be used by patients for their own records and to improve communication with the doctor during medical appointments to get better…

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January 3, 2019

The Future of Healthcare in the EU – Towards more sustainable healthcare organisations 

On 15-16th October, the EFNA Autumn Academy of the Training Initiatives for Neurology Advocates [TINA] took place. 30 participants from neurology patient groups from CEE countries gathered in Bucharest to discuss the future of healthcare in the EU in the context of the upcoming EU elections, as well as how patient groups can achieve better financial…

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January 3, 2019

The 2nd Value Added Medicines Conference in Brussels

The 2nd Value Added Medicines conference held end of November in Brussels gathered a wide range of experts in the healthcare community to raise awareness, inform and debate with the mutual intention of presenting solutions for maximizing the benefits of and encouraging the development of continuous innovation. Adjustments in the healthcare processes – eg. adjustments on purchasing/procurement processes, acceptance of…

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January 3, 2019

EFNA Young People Survey 

EFNA represents 20 European and International associations across a wide variety of neurological disease areas such as multiple sclerosis, epilepsy, migraine and ADHD. Consensus among our members is that young people are currently under-represented in their associations. It is also felt that the issues facing young people affected by brain and brain-related disorders are not…

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