Think Tank members joined later in the day in time for dinner. Members of the Think Tank are our Platinum sponsors: Boston Scientific, Ipsen, Medtronic and Merz. Unfortunately the representatives of Merz and Medtronic could not attend this time. It was a very fruitful meeting where focus was on what to do for next year’s…
Capacity building on Empowering Leadership and Positive Organisational Governance EPF – Second Meeting Bulgaria
EPF held the second EPF Capacity Building Programme: Enabling Leadership and Positive Governance meeting in Sophia, Bulgaria in the beginning of September. The first meeting was in Brussels in March 2019, and you can read more about the meeting in the DE Newsletter 1, 2019. The participants were leaders from countries throughout Europe, to mention…
MDS Congress 2019 in Nice, France
The international congress of the “International Parkinson and Movement Disorder Society” has taken place this year in Nice, in the south of France. Monika Benson and I decided to cover this event by holding a booth for Dystonia Europe and Amadys together. This congress is one of the biggest for international neurologists and movement disorders,…
The Rebel Hand, Italy
A book presented at the A.R.D meeting in Florence, Italy. Carlo Iacomucci is an artist, born in Urbino, the birthplace of Raphael. He began to draw at the age of 13 years and to paint and engrave at 22, he has been a professor of painting disciplines for 36 years. There is no doubt that…
Cervical dystonia: a survey of patients’ experience with botulinum toxin type A injections
This survey is now closed. We want to thank all who participated in the survey, an international survey, conducted by Ipsen and Carenity. The results will help to better understand the experiences of patients receiving botulinum toxin type A injections. This survey was especially targeted for people living in Germany, United Kingdom, Italy and France,…
