March 19, 2026

From Home: Lived experiences with Dystonia

Isobel Platt, is a Dystonia researcher and medical doctor working at the National Hospital for Neurology and Neurosurgery in England. Isobel recently contacted us to tell us about a collaborative ceramics art project she is working on with artist Zoe Wu, regarding lived experiences with dystonia. Their community project, ‘From Home,’ explores the relationship between…

Show this Post ›
March 19, 2026

Dystonia Day 2026 in Malmö, Sweden

Dystonia Day 2026 - You're invited!

Dystonia Day 2026 will take place on 30 May at Hotel Scandic S:t Jörgen in Malmö, Sweden, when we will welcome dystonia patients, their families, caregivers and the medical profession. The program will include patient testimony and expert presentations and there will be lots of opportunities to network and connect with others. Dystonia Day 2026…

Show this Post ›
March 19, 2026

Ask the Expert Webinar (22 April, 2026)

If you have questions about dystonia and botulinum toxin injections, now is your chance to ask the experts! On Wednesday, 22 April, 2026, from 18.00 – 19.00hrs CET, Dystonia Europe will hold a webinar with two dystonia experts, and the audience will be invited to share their questions with them. Our expert panelists are: Dr…

Show this Post ›
March 12, 2026

In Memory of Hermann De Craecker

This week, we received the sad news of the passing of former Dystonia Europe Treasurer, Hermann De Craecker of Belgium. Hermann joined the Board of Dystonia Europe in 2005 and immediately took on the role of Treasurer. With dedication and integrity, he served in this capacity until his retirement in 2012. During those years, he not only…

Show this Post ›