EPF held the second EPF Capacity Building Programme: Enabling Leadership and Positive Governance meeting in Sophia, Bulgaria in the beginning of September. The first meeting was in Brussels in March 2019, and you can read more about the meeting in the DE Newsletter 1, 2019. The participants were leaders from countries throughout Europe, to mention…
MDS Congress 2019 in Nice, France
The international congress of the “International Parkinson and Movement Disorder Society” has taken place this year in Nice, in the south of France. Monika Benson and I decided to cover this event by holding a booth for Dystonia Europe and Amadys together. This congress is one of the biggest for international neurologists and movement disorders,…
The Rebel Hand, Italy
A book presented at the A.R.D meeting in Florence, Italy. Carlo Iacomucci is an artist, born in Urbino, the birthplace of Raphael. He began to draw at the age of 13 years and to paint and engrave at 22, he has been a professor of painting disciplines for 36 years. There is no doubt that…
Cervical dystonia: a survey of patients’ experience with botulinum toxin type A injections
This survey is now closed. We want to thank all who participated in the survey, an international survey, conducted by Ipsen and Carenity. The results will help to better understand the experiences of patients receiving botulinum toxin type A injections. This survey was especially targeted for people living in Germany, United Kingdom, Italy and France,…
EFNA co-hosts World Brain Day events in 4 EU capitals
To celebrate World Brain Day (July 22nd), the European Federation of Neurological Associations [EFNA] co-hosted events in four European capitals – Brussels, Bucharest, Dublin and Warsaw! The aim of these events was to hear what matters most to neurology patients in terms of their health outcomes – #BrainLifeGoals – and to discuss how this can…
