Dystonia is a distinct movement disorder, a clinical entity determined by genetic and environmental factors. However, dystonia is commonly found as a disabling symptom of Parkinson’s disease. Indeed, up to 30% of Parkinson’s patients can exhibit dystonia as a presenting symptom, or even as a motor complication during the course of the disease. Since 2014,…
EBrains Meeting in Brussel 9-10 December 2019
EBrains is working on building a shared digital brain research infrastructure for the EU. It started with the Human Brain Project Human Brain Project, which goals are to interconnect computer science, medicine and neuroscience to accelerate the understanding of the human brain and its diseases, and to bring this knowledge to the benefits of patients…
Tyler’s Hope Think Tank at the University of Florida, USA
On November 12th, 2019, the 10th “Tyler’s Hope Think Tank” took place at the University of Florida, USA. This year around the topic of “DYT-TOR1A dystonia: Finding a road map to cure dystonia”. This meeting and the Tyler’s Hope Foundation are initiatives from the Staab family. The two eldest Staab children, Tyler and Samantha, developed…
Visit to a Dystonia Research Lab
Prof Rose Goodchild is one of the members of the Dystonia Europe Medical and Scientific Advisory Board and she had invited me to her LAB at the VIB KU Leuven, Center for Brain Research in Leuven, Belgium. Since 2011 she has been leading a dystonia research group here. The 5-year project was funded by FDR…
7th Biennial Workshop on Dystonia and Parkinson’s Disease in Rome
This workshop took place on September 18th and 19th; its planner was Prof Antonio Pisani (Tor Vergata University, Rome) who has organised this event since 2007. Dystonia and Parkinson’s disease have traditionally been viewed as distinct movement disorders. However, compelling clinical and experimental evidence suggest that these diseases can share, at least to some extent,…
