September the 21st was a memorable day for Joost van den Dool. On that day he successfully defended his PhD thesis at the University of Groningen in the Netherlands. His research focused on the effectiveness of a standardized physical therapy program for patients…
PERCEPTTM PC Neurostimulator: A breakthrough on the way to adaptive DBS
This article makes reference to certain companies and their products and any opinions expressed should not be taken to be the views of Dystonia Europe or its members. The articles are written by respected authors and are provided for the information of Dystonia Europe News readers. The Medtronic BrainSenseTM Expert Meeting was originally planned as a…
Launch of European Dystonia Research Consortium: EurDyscover
On Tuesday 7 July the kick-off meeting of the EurDyscover Consortium took place on Zoom. Coordinator is the University Hospital of Würzburg, Neurology department, and Jens Volkmann and Chi Wang Ip. Other partners in the consortium are: • Antonio Pisani, IRCCS Fondazione Santa Lucia, Laboratory of Neurophysiology and Plasticity, Rome, Italy • Albino Oliveira-Maia, Fundação…
Participate in a Study by EFNA on Stigma and Neurological Conditions
During Awareness Week 2020 The European Federation of Neurological Associations (EFNA), launched a survey on Stigma and Neurological Conditions . EFNA represents 20 European and International associations across a wide variety of neurological disease areas, such as multiple sclerosis, epilepsy, migraine, ADHD, Movement Disorders such as Dystonia and Parkinson’s, to mention just a few. In…
ERN-RND ePAGs Visiting Crona Clinic in Tübingen
The ERN-RND is a European Reference Network established by the EU to support patients and families affected by rare neurological diseases(RND) which requires much specialised knowledge, treatment and resources. Some diseases are so rare that the necessary knowledge might not be available in the patient’s nearest health centre or country. The patient doesn’t travel but knowledge…
