On November 12th, 2019, the 10th “Tyler’s Hope Think Tank” took place at the University of Florida, USA. This year around the topic of “DYT-TOR1A dystonia: Finding a road map to cure dystonia”. This meeting and the Tyler’s Hope Foundation are initiatives from the Staab family. The two eldest Staab children, Tyler and Samantha, developed…

Prof Rose Goodchild is one of the members of the Dystonia Europe Medical and Scientific Advisory Board and she had invited me to her LAB at the VIB KU Leuven, Center for Brain Research in Leuven, Belgium. Since 2011 she has been leading a dystonia research group here. The 5-year project was funded by FDR…

This workshop took place on September 18th and 19th; its planner was Prof Antonio Pisani (Tor Vergata University, Rome) who has organised this event since 2007. Dystonia and Parkinson’s disease have traditionally been viewed as distinct movement disorders. However, compelling clinical and experimental evidence suggest that these diseases can share, at least to some extent,…

This year London hosted an outstanding meeting of the Dystonia Europe (DE) family. People with dystonia, their loved ones, physicians, nurses, speech therapists, physiotherapists gathered to learn, teach and experience the magic of D-Days. The conference in general, was divided into two parts: patient’s experience and scientific update. Merete Avery, The President of Dystonia Europe,…