EPF (European Patient Forum) is an umbrella organisation that works with patients’ groups in public health and health advocacy across Europe. Dystonia Europe, who is a member of EPF, participates in a series of 5 webinars within Digital Health that is initiated and held by EPF. Health is an area which Europe can benefit from,…
Meet Thijs Vandewoude, Board Member and Contact Person Belgium
My name is? Thijs Vandewoude. I’m 36 years old and I live in West-Flanders. I work as a court clerk within the Belgian Judiciary. Thijs Vandewoude, Belgium Why do you like helping others? Because I experienced first-hand how important it can be to meet fellow patients and share experiences. I would like all dystonia patients…
Professor Dressler on Botulinum Toxin Therapy in the Times of Corona
We talked to Prof Dressler how the Corona crisis has affected dystonia patients in Germany but also in other countries. Q: Professor Dressler, the Corona crisis has severely affected botulinum toxin therapy. What happened? Dressler: During the Corona crisis the access to many routine medical services were restricted or even completely blocked. This also happened…
EFNA #BrainLifeGoals Project Grant Winners 2020
The #BrainLifeGoals campaign is an initiative of the European Federation of Neurological Associations (EFNA) that aims to raise awareness of the impact of neurological disorders. EFNA started an initiative #BrainLifeGoals Project Grant last year, to support work on one of the EFNA’s advocacy themes. In 2019, in support of this campaign, EFNA awarded grants of…
Launch of European Dystonia Research Consortium: EurDyscover
On Tuesday 7 July the kick-off meeting of the EurDyscover Consortium took place on Zoom. Coordinator is the University Hospital of Würzburg, Neurology department, and Jens Volkmann and Chi Wang Ip. Other partners in the consortium are: • Antonio Pisani, IRCCS Fondazione Santa Lucia, Laboratory of Neurophysiology and Plasticity, Rome, Italy • Albino Oliveira-Maia, Fundação…
