Dystonia Europe has the pleasure of running a training course for qualified physiotherapists in the treatment of Cervical Dystonia. The course will be led by Johanna Blom who has 18 years experience treating dystonia and training other professionals. She has written a book about cervical dystonia and spasticity and in collaboration with Dystonia Europe has…
New Hope for People Living with Dystonia: How DBS Is Evolving
Discover how new technologies are helping doctors better tailor treatment to each patient. Deep brain stimulation (DBS) has been used for patients with severe dystonia, who had no other treatment options, since the mid-1990s. At the end of the 1990s and in the early 2000s, clinical studies showed that DBS of the globus pallidus internus (GPi) is an…
Meet Liam Virgo – My Dystonia Story
The Sudden Onset In 2016 within a few days I lost my ability to walk and talk. I transitioned from a healthy 13 year old to one who couldn’t move or even speak. After months in hospital I was eventually diagnosed with severe Functional Neurological Disorder (FND) and Dystonia. I was suddenly and severely disabled,…
Physiotherapists Train to Improve Dystonia Care
A specialised physiotherapy course focusing on dystonia recently brought twenty physiotherapists to the National Hospital for Neurology and Neurosurgery (Queen Square) in London. Hosted by physiotherapist Hanna Louissant and organised by Dystonia Europe, the workshop aimed to strengthen knowledge of physiotherapy as part of dystonia treatment. Opening the course, Monika Benson emphasised the long-term goal of improving treatment outcomes and quality of life…
Sixth National Dystonia Day — Don Gnocchi Foundation
Milan, 27 September 2025 Theme: “From diagnosis to treatment: the role of the multidisciplinary team in dystonia” . On Saturday, September 27, the Don Gnocchi Foundation hosted the sixth National Dystonia Day, promoted by A.R.D. (Italian Association for Research on Dystonia). A packed hall, focused presentations, and a strong sense of concreteness marked the event,…