Dystonia Europe is pleased to announce the appointment of Alexandra Klemann as the newest member of its Board. Alexandra represents our member organisation Dystonie-und-Du (DyD) and brings with her a wealth of personal experience, professional expertise, and dedication to the community. Based in Berlin, Alexandra is mother of a 12-year-old son and a proud cat…
Living with Rare Neurological Conditions: Mental Health Challenges and the Role of Patient Advocacy at the European Parliament
On Wednesday, 25 February 2026, the Members of the European Parliament (MEP) Interest Group on Brain Health and Neurological Conditions convened at the European Parliament in Brussels to discuss “Living With Rare Neurological Conditions and the Impact on Mental Health and Wellbeing.” The event, co-organised by MEP Ondřej Dostál (Czechia, Non-attached Member of the European…
Cervical Dystonia Physiotherapy Course, September 2026 – London UK
Dystonia Europe has the pleasure of running a training course for qualified physiotherapists in the treatment of Cervical Dystonia. The course will be led by Johanna Blom who has 18 years experience treating dystonia and training other professionals. She has written a book about cervical dystonia and spasticity and in collaboration with Dystonia Europe has…
New Hope for People Living with Dystonia: How DBS Is Evolving
Discover how new technologies are helping doctors better tailor treatment to each patient. Deep brain stimulation (DBS) has been used for patients with severe dystonia, who had no other treatment options, since the mid-1990s. At the end of the 1990s and in the early 2000s, clinical studies showed that DBS of the globus pallidus internus (GPi) is an…
Meet Liam Virgo – My Dystonia Story
The Sudden Onset In 2016 within a few days I lost my ability to walk and talk. I transitioned from a healthy 13 year old to one who couldn’t move or even speak. After months in hospital I was eventually diagnosed with severe Functional Neurological Disorder (FND) and Dystonia. I was suddenly and severely disabled,…
