Given the wide variety of rare dystonia types, the Children’s Joy Association in Romania stands in solidarity and marks Rare Disease Day each year as an essential effort to raise awareness among both the general public and specialists in this field. Rare Disease Day was celebrated through an emotional and deeply supportive event, where empathy…
The Finnish Dystonia Days 2025 – Themes: Research, Treatment and Experience
The Dystonia Days 2025 of the Finnish Association were held in Kouvola, South Finland in September. Some 50 members gathered to meet each other, to get new information about dystonia and to give and to deliver support and share their best practices, how to live with dystonia. The theme of the days were research, treatment…
From Home: Lived experiences with Dystonia
Isobel Platt, is a Dystonia researcher and medical doctor working at the National Hospital for Neurology and Neurosurgery in England. Isobel recently contacted us to tell us about a collaborative ceramics art project she is working on with artist Zoe Wu, regarding lived experiences with dystonia. Their community project, ‘From Home,’ explores the relationship between…
Dystonia Day 2026 in Malmö, Sweden
Dystonia Day 2026 will take place on 30 May at Hotel Scandic S:t Jörgen in Malmö, Sweden, when we will welcome dystonia patients, their families, caregivers and the medical profession. The program will include patient testimony and expert presentations and there will be lots of opportunities to network and connect with others. Dystonia Day 2026…
Ask the Expert Webinar (22 April, 2026)
If you have questions about dystonia and botulinum toxin injections, now is your chance to ask the experts! On Wednesday, 22 April, 2026, from 18.00 – 19.00hrs CET, Dystonia Europe will hold a webinar with two dystonia experts, and the audience will be invited to share their questions with them. Our expert panelists are: Dr…
