In April 2025, Dr Luca Pollini, a Child Neurologist and Psychiatrist from Rome, became the first recipient of the Dystonia Europe Grant for Patient Care. This is a new initiative for prolonged, comprehensive training in Dystonia, in order to get fully experienced doctors that will provide high quality care for patients, disseminate knowledge, connect with…
Thank You, Edwige Ponseel
As Edwige Ponseel concludes her term as President of Dystonia Europe, we would like to express our heartfelt thanks for her dedication, leadership, and commitment to the dystonia community. Since joining the Board in 2017 and serving as President since 2022, Edwige has played a key role in strengthening Dystonia Europe and supporting its member…
Gill’s Dystonia Days Diary
Below is a diary excerpt from Dystonia Europe’s President, Gill Ainsley, written following the 2026 General Assembly and Dystonia Day in Malmö, Sweden: __________________________ Well, here I go again, off on my travels. It doesn’t seem like long since the last time I met with the Dystonia Europe Board, but it was a few months…
Alexandra Klemann Joins Dystonia Europe Board
Dystonia Europe is pleased to announce the appointment of Alexandra Klemann as the newest member of its Board. Alexandra represents our member organisation Dystonie-und-Du (DyD) and brings with her a wealth of personal experience, professional expertise, and dedication to the community. Based in Berlin, Alexandra is mother of a 12-year-old son and a proud cat…
Living with Rare Neurological Conditions: Mental Health Challenges and the Role of Patient Advocacy at the European Parliament
On Wednesday, 25 February 2026, the Members of the European Parliament (MEP) Interest Group on Brain Health and Neurological Conditions convened at the European Parliament in Brussels to discuss “Living With Rare Neurological Conditions and the Impact on Mental Health and Wellbeing.” The event, co-organised by MEP Ondřej Dostál (Czechia, Non-attached Member of the European…
