As Edwige Ponseel concludes her term as President of Dystonia Europe, we would like to express our heartfelt thanks for her dedication, leadership, and commitment to the dystonia community.
Since joining the Board in 2017 and serving as President since 2022, Edwige has played a key role in strengthening Dystonia Europe and supporting its member organizations. She has led with compassion, determination, and a strong belief in the power of collaboration, helping to ensure that the voices of people living with dystonia are heard across Europe.
Alongside her work with Dystonia Europe, Edwige has been a longstanding leader of AMADYS, the French Dystonia Association. Through her commitment at both national and European levels, she has worked tirelessly to raise awareness, support patients and families, and promote greater understanding of dystonia.
Living with dystonia herself, Edwige has brought valuable insight, empathy, and authenticity to her advocacy. Her warmth, dedication, and ability to bring people together have made a lasting impact on the dystonia community.
While this marks the end of her term as President, we are delighted that Edwige will remain closely involved with Dystonia Europe as Research Advisor. Her experience, knowledge, and passion for advancing dystonia research will continue to be an invaluable asset to our organization. In that sense, we are not saying goodbye—rather, we look forward to continuing to work together in a new and important role.
On behalf of the Board, member organizations, and the wider dystonia community, we thank Edwige for her years of service and her unwavering commitment to improving the lives of people affected by dystonia.
We wish her every success and happiness in the years ahead and look forward to the continued contribution she will make to Dystonia Europe.
With sincere gratitude,
Dystonia Europe
