Hello everyone, My name is Adam. I am a Board Member of Dystonia Europe and Board Secretary of the Polish Dystonia Association. I am also a founder of a Facebook support group for dystonia patients and I run a website called ”Dystonia Good Story”. I am Polish but I live in Ireland. Paradoxically, my work…
Dystonia Europe on Youtube
Have you seen our Youtube channel? https://www.youtube.com/user/DystoniaEurope Follow us here to get our latest videos! At our 25th Anniversary Conference and D-DAYs 2018 in Brussels we live streamed and video-recorded our event for the first time. About 500 people watched the livestream during the two-day conference. Now all presentations are available on the Dystonia Europe youtube…
Karl Speech App
New KarlSpeech AAC App Launched June 2018 – Developed by Dystonia Sufferer’s Parents The KarlSpeech Smart Device App is an Augmentative Communications App (AAC) for people with severe Speech & Communications Difficulties. Designed specifically for Apple iPhone, iPad and iPod Touch, The App is integrated with Universal Symbols provided by SymbolStix. The…
25th Anniversary of DDG – the German Dystonia Association (Germany)
Germany – 25th Anniversary of DDG – the German Dystonia Association The Annual General Assembly of the Deutsche Dystonie Gesellschaft (DDG) was chaired by its president Hedwig Hagg and took place in the Hotel Strada in Kassel from 21st to 22nd July 2018. “Dystonia is moving – back then and today” (Dystonie bewegt – damals wie…
Dystonia Europe Summer Think Tank 2018
Last July the 5th Dystonia Europe Think Tank was held in Lund Sweden. The Think Tank is held twice a year and members are the Dystonia Europe Board and two representatives from each one of our Platinum Sponsors: Merz, Medtronic, Ipsen and Boston Scientific. Together we discuss projects and activities, whit the best interest of…
