EPF 20th Anniversary Marco Greco, President of European Patient Forum (EPF) opened the meeting 28th April 10.30 am. in Brussels. Dystonia Europe is a full member of EPF and was present at the meeting. Looking back the organisation has grown tremendously during the 20 years since it was founded in 2003. Reflections were made on…

This year Dystonia Europe is celebrating its 30th Anniversary. Back row: Didi Jackson, Germany; Alistair Newton, UK; Feli Justo Alonso, Spain; Alan Leng, UK; Gunilla Noren, Sweden. Front row: Tore Wirgenes, Norway; Jean-Marc Bildan, France; Laura Latini, Italy; Maja Relja, Croatia; Beppy Smitshoek, Netherlands. Absent: Kai Naunung, Denmark   Our organisation was formed as an…

Dear Friends, I send my very best wishes to you all as you celebrate Dystonia Europe’s thirtieth anniversary!  Many, many congratulations and thanks to the large number of people who have contributed so much to the successes of our organisation over those thirty years. This must include not only our DE Board members, staff, advisers,…

What is your name? My name is Claudia Schmid. I have passed the big  6-0, and I have been married to my childhood sweetheart for the past 45 years now. We have 3 children, who are grown-ups and don’t live at home anymore. We have lived the past 20 years in a beautiful house with…

At the beginning of May EFNA held its 22nd Annual General Assembly in Amsterdam, The Netherlands. Representatives from several neurological umbrella organizations such as Parkinson’s Europe, Pain Alliance Europe, Ataxia Europe, Restless Legs Europe etc attended the meeting. There were roundtable discussions on the IGAP* initiative and how to implement this across Europe. The formal…