This week over 300 movement disorder experts from all over the world came to the Würzburg Rezidens Castle in Würzburg Germany to the Expert Summit on the future of deep brain stimulation. Main organizer of the event was Prof Volkmann from Würzburg University Hospital. Organizing committee included also Prof Andrea Kühn from Charité University Medicine…

This week, BioPontis Allicance held its first Patient Integration workshop in Europe, at the Bio Incubator in Leuven, Belgium. Dystonia Europe Executive Director Monika Benson participated together with representatives of about 10 other patient organizations. BioPontis Alliance is launching a series of Patient Integration Workshops in the US and in Europe. This workshop series has…

The first week of May Dystonia Europe President Merete Avery and Executive Director Monika Benson travelled to Hannover in Germany. The Congress started on Wednesday afternoon with the 2nd International Conference on Rehabilitation of Dystonia, followed by the 1st International Conference on Dystonia in Sports. This 3rd International Congress on Treatment of Dystonia brought together…

A joint project between Dystonia Europe and NDF – the Norwegian Dystonia Association. It was a great honour for the Norwegian Dystonia Association (NDF) to be co-organizer of this year’s D-DAYS conference in Oslo, the capital of Norway! Since Oslo is my childhood city, and has an important place in my heart, it was very…

This week the Dystonia Europe management met with Ipsen representatives at the Ipsen headquarters in Paris. Ipsen is one of the major companies manufacturing the botulinum toxin which is used to treat dystonia. The collaboration between Ipsen and Dystonia Europe has developed over the years and we have worked successfully together in partnership on several projects…