A few months ago the Dystonia Europe Board asked me to organise the 4th Mydystonia Ambassadors meeting in my home town of Newcastle, England. I have never organised a meeting like this before and knew there was a lot to do and a lot to live up to as previous ambassador meetings had been very…

As part of Training Initiatives for Neurology Advocates [TINA], European Federation of Neurological Associations [EFNA] coordinated a meeting in Poland. This workshop took place Monday 28th and Tuesday 29th October 2019 in Warsaw and gave participants the opportunity to discuss specific access challenges in their countries/disease areas and reach consensus on the main barriers to…

My name is Sissel Buskerud Mother of two sons, 4 grandchildren and a dog. Married to Oddbjørn for 49 years. Living close to Oslo in Norway. Work experience and how it relates to my work as Dystonia Ambassador I studied accounting and business at school, and have been working for many years as CFO (Chief financial officer)…

12 October the Norwegian Dystonia Association  (NDF) held it’s meeting in Ålesund, a charming small city on the west coast of Norway. The leader of NDF Johan Arnfinn Warvik welcomed all and  informed about the work of the organisation. NDF has a focus on many areas, like networking with the National Health providers, Neurologists, Physio-therapists…

At the Health House in Leuven the first interactive patient education platform on Deep Brain Stimulation was launched – DBS Select. The invited guests were divided into two groups and then taken on a tour to discover the DBS storyline following the patient journey from considering DBS, implant of DBS, and the outcome. Participants could…