In this episode we talk to Donna Walsh from EFNA, the European Federation of Neurological Associations and Professor Emeritus Marjan Jahanshahi from UCL Queens Square Institute of Neurology in London. We discuss the state of the world for people living with neurological disorders during the Covid-19 pandemic. Donna shares about some of the work EFNA…
Newsletter Winter 2020
NEWSLETTER WINTER 2020
Digital Activities: Dystonia Webinar Series & the Positive Twist Podcast
As already shared in previous newsletters our most important event and activity every year, our annual meeting the D-DAYs Conference 2020 was cancelled due to the Covid-19 pandemic. Together with our partners (Boston Scientific, Ipsen and Medtronic) and the Dystonia Europe team we could rapidly change from the planned face-to-face activities to organizing on-line events…
First Italian Dystonia Day
On September 26th A.R.D. (Associazione per la Ricerca sulla Distonia) organized the first Italian Dystonia Day. At the end of last year we had the idea of creating this day and began to draft some concepts. However, in March we realised that due to the Covid-19 pandemic we were compelled to change our plans. Eventually,…
Botulinum Toxin Therapy: An Update
The therapeutic use of Botulinum Toxin (BT) was established some 40 years ago in ophthalmology by Dr Alan B Scott. Soon its use spread into the therapy of various dystonia indications. Ever since, it has been the backbone of dystonia treatment. Average subject-ive improvement is for most indications in the order of 70 to…
