EPF (European Patient Forum) is an umbrella organisation that works with patients’ groups in public health and health advocacy across Europe. Dystonia Europe, who is a member of EPF, participates in a series of 5 webinars within Digital Health that is initiated and held by EPF. Health is an area which Europe can benefit from,…
Meet Thijs Vandewoude, Board Member and Contact Person Belgium
My name is? Thijs Vandewoude. I’m 36 years old and I live in West-Flanders. I work as a court clerk within the Belgian Judiciary. Thijs Vandewoude, Belgium Why do you like helping others? Because I experienced first-hand how important it can be to meet fellow patients and share experiences. I would like all dystonia patients…
Press release: September is Dystonia Awareness Month
PRESS RELEASE: Brussels, 22 August 2020 SEPTEMBER IS DYSTONIA AWARENESS MONTH – JUMP FOR DYSTONIA TO SUPPORT, SHARE, WIN On September 1 Dystonia Europe is relaunching their successful awareness campaign Jump for Dystonia of 2015 with a new twist, asking their followers what kind of jumper they are. Dystonia Europe is asking everyone to celebrate…
Professor Dressler on Botulinum Toxin Therapy in the Times of Corona
We talked to Prof Dressler how the Corona crisis has affected dystonia patients in Germany but also in other countries. Q: Professor Dressler, the Corona crisis has severely affected botulinum toxin therapy. What happened? Dressler: During the Corona crisis the access to many routine medical services were restricted or even completely blocked. This also happened…
Survey on Impact of COVID-19 Pandemic on Symptoms, Activity and Quality of Life in People Living with Dystonia.
Associate Professor Lynley Bradnam, Dr Rebecca Meiring, Dr Silmara Gusso, research assistant Tia Lindbom, Department of Exercise Sciences, University of Auckland, invite you take part in an anonymous survey investigating the impact of COVID-19 pandemic on symptoms, activity and quality of life in people living with Dystonia. You are eligible to take part if you have…
