Dr Jeanette Koth To have Contact Persons is an important part of the work the Norwegian Dystonia Association (NDF). A contact person, in this context, means a person who is diagnosed with dystonia himself/herself and has had it for a while, and has been trained on how to respond to a person that contacts NDF….
Prof Tom Warner is elected President of the Association of British Neurologists
Dystonia Europe is delighted to congratulate Prof Tom Warner, Institute of Neurology, Queen Square, London, on his recent election as President of the Association of British Neurologists. This is a well-deserved honour for a very fine clinician and researcher, who is Director of the Reta Lila Weston Institute of Neurological Studies, and Director of the…
Dystonia UK Activities 2021
As another unpredictable year draws to a close, Dystonia UK reflects on a busy year of activities, while eagerly looking forward to the potential opportunities of the New Year. Virtual activities have continued with great strength. At the time of writing, we have provided 6 ‘Reach Out, Reach All’ webinars, including one live from Scotland,…
Book about Musician’s Dystonia, by Coralie Cousin: “The Day My Hand Stopped Playing: Treating Musician’s Dystonia: Aurélien’s story”
Dystonia Europe is pleased to present the new book by Coralie Cousin, a French therapist who has been close to our Medical and Scientific Advisory Board for many years. We are delighted to welcome this book, as musician’s cramp is rarely documented or reported. With a…
Survey for patients that are diagnosed with Myoclonus Dystonia that have a confirmed mutation in the SGCE gene, and their families
We have received information from ERN-RND – European Reference Network for Rare Neurological Diseases on a survey only for patients that are diagnosed with Myoclonus dystonia that have a confirmed mutation in the SGCE gene, and their families. We are very grateful if you would please share this among your members and as soon as possible,…
