Hello everybody in Europe from Tuscany, Italy! I’m Annalisa and I have been suffering from cervical dystonia since 1995, when I was 28 years old. Most of you will probably know what cervical dystonia or spasmodic torticollis is. It affects the muscles of your…
A.D.D.E.R. Action for Dystonia, Diagnosis, Education and Research
This is the third year A.D.D.E.R. have designed and delivered our dystonia awareness campaign throughout the month of September. After a great deal of thought I came up with the idea of asking people to imagine what it is like to have various types of dystonia. The campaign was aimed at people who know nothing about…
Dystonia Day 2021
Well what can I say, the Dystonia Day conference held online on Saturday 4th September 2021 was a huge success with many attendees watching and listening to various experts in the field of Dystonia. Adam Kalinowski (DE President) started the day off by introducing us all to the conference and giving a brief…
Finnish Dystonia Days 2021 in Helsinki
During Dystonia Days the Finnish association had an annual meeting where Jukka Sillanpää was re-elected as a president for the period 2022-2023. Annually half of the board (and vice members) are to be elected. In the picture (from the left) Pekka Karimerto, Taina Lehtinen, Jukka Sillanpää, Sari Kuja-Kyyny, Paula Happonen, Leea Sihvo-Rajala and Martti…
Meet Paula Happonen, Board Member of the Finnish Dystonia Association
What is your name? My name is Paula Happonen. What are the benefits of working within a patient organisation? By volunteering I am able to contribute to well-being of other people who live with dystonia. I am able to provide and receive support. I have made…
