Dystonia Europe had an online board meeting using zoom on the 20th January and another (also on zoom) on the 19th April. On the 28th February we had a board meeting face-to-face in Brussels. Some topics on the agenda were the Video Awareness Project and the upcoming Dystonia Days and Annual General Assembly on the…
30th Anniversary Norwegian Dystonia Association
The Norwegian Dystonia Association (NDF) has celebrated its 30th Anniversary with a patient meeting organised by NDF 15th April at Olavsgaard Hotel. More than 60 persons attended, patients, family members etc. Some members that were at Olavsgaard had been a member of NDF for more than 20 yrs. The countries around Norway, (Scandinavia) were invited…
Winter Think Tank 2023
From left: Monika Benson, Merete Avery, Jukka Sillanpää, Catalina Crainic, Sissel Buskerud, Susanne Proesche, Ipsen, Gill Ainsley, Oleks Gorbenko – Ipsen and Abdullah Alghourani – Merz Dystonia Europe Winter Think Tank 2023 was held in Brussels on 1st March. Members of the Think Tank are our Platinum sponsors: Ipsen, Merz and Medtronic and all DE…
Dystonia Europe Newsletter Winter 2022
We are happy to let you know that our Dystonia Europe Newsletter Winter 2022 is out. Download the newsletter here.
Adam Kalinowski – In Memoriam
It is with great sadness Dystonia Europe has announced the passing of our President, Adam Kalinowski, at the age of 37, following a tragic accident on 10 November 2022. Adam is from Poland but has lived in Ireland for the last 16 years. In 2006 he was diagnosed with cervical dystonia. Very soon he…
