August 10, 2022

Dystonia and Relationships: Preliminary Survey Results

In addition to the well-known motor features of people with dystonia, also many have been reporting non-motor symptoms. Functional impairment, pain, social  embarrassment, anxiety, social phobia, and stigmatisation seem particularly common and have a clear impact on the quality of life. This might considerably influence self-confidence and could, therefore, have an impact on relationship and…

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June 15, 2022

David Marsden Award Winner Dr Susanne Knorr

At the end of Dystonia Europe’s annual conference Dystonia Days, President Adam Kalinowski presented the David Marsden Award to Dr Susanne Knorr from the University Hospital in Würzburg Germany, coincidentally the same place that last year’s winner was from. Susanne then went on to present her research ‘The evolution of dystonia-like movements in TOR1A rats after…

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June 5, 2022

The new Boston Scientific Visualisation Software: Helping to Provide Personalised Deep Brain Stimulation Treatment for Dystonia Patients

For patients living with dystonia, deep brain stimulation (DBS) is an established, safe and effective treatment option.1 DBS is a surgical procedure during which two thin electrodes are inserted into the brain and conneted to a stimulator via an extension in the chest or abdomen.2 The treatment works by delivering targeted electrical pulses to the…

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May 30, 2022

Winner of the David Marsden Award 2022 Dr. Susanne Knorr

Susanne Knorr, Senior Consultant Neurologist and Researcher Würzburg University Hospital. Photo by Stephan Röhl Our congratulations to Dr. Susanne Knorr, department  of Neurology, University Hospital of Würzburg, Germany and the David Marsden Award 2022 winner for her paper: “The evolution of dystonia-like movements in TOR1A rats after transient nerve injury is accompanied by dopaminergic dysregulation and…

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May 30, 2022

Prof. Tom Warner, Queen Square London: About the Research of Dr. Susanne Knorr, the David Marsden Award Winner 2022

The changes in the brain that lead to dystonic movements have been the subject of extensive investigation, particularly for the genetic forms. DYT1 dystonia is the commonest genetic cause of childhood onset dystonia and various studies in cell, animal and human studies suggest it is due to a problem with circuits controlling movement, focused on…

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