European Academy of Neurology is a non-profit, independent organisation representing more than 45,000 members, as well as 47 European national societies. The 8th Congress of the EAN took place in Vienna in June this year. EAN Congress is one of the biggest neurological events in Europe. This year 380 lecturers and 5300 onsite participants took…
Diet and Dystonia Survey
‘Diet and Dystonia’ is now open on our platform. The main goal of this research is to examine how diet affects dystonia, and if so how dystonia specialists could address these problems. The survey is completely anonymous, which means that no personal information will be collected. We will be very grateful if you decide to…
Dystonia and Relationships: Preliminary Survey Results
In addition to the well-known motor features of people with dystonia, also many have been reporting non-motor symptoms. Functional impairment, pain, social embarrassment, anxiety, social phobia, and stigmatisation seem particularly common and have a clear impact on the quality of life. This might considerably influence self-confidence and could, therefore, have an impact on relationship and…
David Marsden Award Winner Dr Susanne Knorr
At the end of Dystonia Europe’s annual conference Dystonia Days, President Adam Kalinowski presented the David Marsden Award to Dr Susanne Knorr from the University Hospital in Würzburg Germany, coincidentally the same place that last year’s winner was from. Susanne then went on to present her research ‘The evolution of dystonia-like movements in TOR1A rats after…
The new Boston Scientific Visualisation Software: Helping to Provide Personalised Deep Brain Stimulation Treatment for Dystonia Patients
For patients living with dystonia, deep brain stimulation (DBS) is an established, safe and effective treatment option.1 DBS is a surgical procedure during which two thin electrodes are inserted into the brain and conneted to a stimulator via an extension in the chest or abdomen.2 The treatment works by delivering targeted electrical pulses to the…
