The frame around NDF (Norsk Dystoniforening’s) annual meeting in April couldn’t be better. Spring had arrived and Trondheim was bathed in sunlight with nice spring temperatures. Here 47 members were gathered for a weekend that included meetings, guided sightseeing around the city, social fellowship and good food. To the left, Johan Arnfinn Warvik, President of the…
Webinar Drugs and Dystonia
MD PhD. Inger Marie Skogseid Senior Consultant Neurologist and Researcher Oslo University Hospital Photo by The Information Department at University Hospital On February 22nd we hosted our 10th webinar in our webinar series. There were nearly 60 participants who followed the webinar on zoom, and sent live on Facebook. Inger Marie gave us an…
Winter Think Tank 2022
Dystonia Europe Winter Think Tank 2022 was held on Zoom last February. DE had a Board Meeting the day before. Members of the Think Tank are our Platinum sponsors: Boston Scientific, Ipsen, Medtronic and Merz. President Adam Kalinowski welcomed all to the Think Tank meeting and Executive Director Monika Benson gave an update on the…
DBS study in Germany is still Recruiting Patients suffering from Cervical Dystonia
A randomized, sham-controlled trial of pallidal neurostimulation versus botulinum toxin treatment for cervical dystonia (StimTox-CD) Deep brain stimulation (DBS) of the internal globus pallidus is highly effective for various forms of primary dystonia, but is currently considered a last resort therapy for severe and medication-refractory segmental or generalized dystonia according to treatment guideline. The first-line treatment…
Meet Johan Arnfinn Warvik from Norway: My Life with and without Dystonia
After using some parts of my story as background for a presentation on “Living with Dystonia”, I was strongly encouraged to share my story in the Norwegian Dystonia Newsletter. I was born on the west coast of Norway in 1954 and have had dystonia since 1985. Normal life: Like most of us, my life started…
