We are delighted to present this new page in our newsletter. Here we will share the most recent publications in the field of dystonia research together with a summary in lay language. Ledda C, Artusi CA, Tribolo A et al. Time to onset and duration of botulinum toxin efficacy in movement disorders. J Neurol. 2022…
Meet Jan from England: My Journey with Dystonia
I first noticed a problem with my neck, seventeen years ago at the age of 43. The main difficulty was trying to turn my neck especially when crossing a road. The situation worsened very quickly in that my neck was turning to the right. At the time I was working as a financial adviser…
Annual Meeting in the Norwegian Dystonia Association
The frame around NDF (Norsk Dystoniforening’s) annual meeting in April couldn’t be better. Spring had arrived and Trondheim was bathed in sunlight with nice spring temperatures. Here 47 members were gathered for a weekend that included meetings, guided sightseeing around the city, social fellowship and good food. To the left, Johan Arnfinn Warvik, President of the…
Webinar Drugs and Dystonia
MD PhD. Inger Marie Skogseid Senior Consultant Neurologist and Researcher Oslo University Hospital Photo by The Information Department at University Hospital On February 22nd we hosted our 10th webinar in our webinar series. There were nearly 60 participants who followed the webinar on zoom, and sent live on Facebook. Inger Marie gave us an…
Winter Think Tank 2022
Dystonia Europe Winter Think Tank 2022 was held on Zoom last February. DE had a Board Meeting the day before. Members of the Think Tank are our Platinum sponsors: Boston Scientific, Ipsen, Medtronic and Merz. President Adam Kalinowski welcomed all to the Think Tank meeting and Executive Director Monika Benson gave an update on the…