During the last week of March the second part of the workshop “Physiotherapy and Cervical Dystonia” took place at the Scandic Plaza Hotel in Umeå, Sweden. The first part of this training took place last October. Physiotherapist Johann Blom Together with Göran Olsson from Swedish Dystonia Education, Physiotherapist Johanna Blom welcomed the participants to…
Board Meeting Update
Dystonia Europe had an online board meeting using zoom on the 20th January and another (also on zoom) on the 19th April. On the 28th February we had a board meeting face-to-face in Brussels. Some topics on the agenda were the Video Awareness Project and the upcoming Dystonia Days and Annual General Assembly on the…
Winter Think Tank 2023
From left: Monika Benson, Merete Avery, Jukka Sillanpää, Catalina Crainic, Sissel Buskerud, Susanne Proesche, Ipsen, Gill Ainsley, Oleks Gorbenko – Ipsen and Abdullah Alghourani – Merz Dystonia Europe Winter Think Tank 2023 was held in Brussels on 1st March. Members of the Think Tank are our Platinum sponsors: Ipsen, Merz and Medtronic and all DE…
Adam Kalinowski – In Memoriam
It is with great sadness Dystonia Europe has announced the passing of our President, Adam Kalinowski, at the age of 37, following a tragic accident on 10 November 2022. Adam is from Poland but has lived in Ireland for the last 16 years. In 2006 he was diagnosed with cervical dystonia. Very soon he…
Launch in Europe: Dystonia Physio Exercise HUB – a Digital Platform with Exercises for Cervical Dystonia
One year ago, a digital platform for cervical dystonia was launched in Sweden, and a few weeks ago, on 28 November it was time for the launch in Europe. Research has shown that Botulinum toxin injections (BoNT-inj) combined with physiotherapy provide good benefit for most people with cervical dystonia (CD). Advanced treatment with Deep Brain…
