December 1, 2021

Have you signed up for EFNA’s eLearning content yet?

In late 2020, EFNA launched a pilot series of online e-learning modules on advocacy-related topics. These courses aimed to upskill participants on how they can effectively advocate in a virtual world by identifying and engaging key stakeholders and developing partnerships, hosting successful online events and developing and disseminating key advocacy messages. The courses are video-based…

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November 15, 2021

EurDyscover Annual Meeting Update

On November 16 the annual meeting of the EurDyscover Consortium was held on-line. Professors Chi Wang Ip and Jens Volkmann welcomed the participants. Each working group then gave a presentation and update on the progress of the work. The Consortium includes specialists from dystonia expert centers in Germany, Czech Republic, France, Italy and Portugal. By…

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November 10, 2021

DE President at the Celebration of the 30th Anniversary of the Spanish Dystonia Association

ALDE—Asociación de Lucha Contra la Distonía en España (the Spanish dystonia association), held a conference on November 20th in Madrid, to celebrate its 30th anniversary. Adam Kalinowski, took part in this event as a representative of Dystonia Europe. It was a great opportunity for our president to meet representatives and partners of ALDE and to…

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