United Kingdom: Conference for Parents & Carers of Children and Young People with Dystonia On 22nd September we were delighted to deliver our Conference for Parents and Carers of Children and Young People with Dystonia which was attended by over 100 adults and children. Carol Huntley, whose husband has dystonia, was there with her family and…
Romania – Report from a Busy Dystonia Awareness Month
The Romanian Association for patients with dystonia: Asociata Children’s Joy organized on the 8 th of September, the 6 th edition of the National Conference dedicated to patients who suffer from various types of dystonia, their families, and specialists who work in this field. The event took place during dystonia awareness month. The event included…
25th Anniversary of DDG – the German Dystonia Association (Germany)
Germany – 25th Anniversary of DDG – the German Dystonia Association The Annual General Assembly of the Deutsche Dystonie Gesellschaft (DDG) was chaired by its president Hedwig Hagg and took place in the Hotel Strada in Kassel from 21st to 22nd July 2018. “Dystonia is moving – back then and today” (Dystonie bewegt – damals wie…
Dystonia Europe Summer Think Tank 2018
Last July the 5th Dystonia Europe Think Tank was held in Lund Sweden. The Think Tank is held twice a year and members are the Dystonia Europe Board and two representatives from each one of our Platinum Sponsors: Merz, Medtronic, Ipsen and Boston Scientific. Together we discuss projects and activities, whit the best interest of…
