My story with Dystonia started in February last year. It came suddenly, without any signs of warning. My neck became stiff and my head started to turn to the side. First was there was disorientation – what’s happening to me? Why can’t I control myself? Why is my body not listening to me? Work and…
Boston Scientific Foundation Grant Opportunities
Last year Boston Scientific, innovative medical solutions provider, launched its Boston Scientific Foundation for the EMEA region (Europe, Middle East and Africa) to contribute to society by supporting people in the communities. The mission of the Foundation is to support well-being through innovative solutions. Its strategic focus is to address issues of public interest in…
EU Activities – Brain Awareness by Sharing #brainlifegoals
Brain Awareness Week (March 11 – 17) is the global campaign to increase public awareness of the progress and benefits of brain research. To mark the occasion, EFNA promoted the new #BrainLifeGoals campaign, and encouraged patient advocates to share their goals alongside the hashtag. Sharing #LifeGoals has become a popular trend in social media. #LifeGoals are…
Dystonia Europe Founding President Receives Honour at Buckingham Palace
Founding President of Dystonia Europe is honoured by Queen Elizabeth II for his 30 years’ work for dystonia and other neurological patients across Europe. Our founding President, Alistair Newton M.B.E., has received the honour of becoming a Member of the Ancient Order of the British Empire (MBE) for services to dystonia and other neurology patients…
Swedish Dystonia Association 25th Anniversary
Last February the SDF – the Swedish Dystonia Association celebrated its 25th Anniversary in Stockholm, Sweden. The organization held its Annual General Assembly and about 35 members attended. Leaving President Beng-Eric Calles welcomed everybody to the meeting. After the formal part three physiotherapists gave a workshop on physiotherapy and dystonia. After a short introduction they held…
