August 1, 2018

France | Lifting the Lid

Professor Brigitte Girard is a specialized ophthalmologist located in Paris, famous in dystonia and blepharospasm.  She’s the Vice-President of AMADYS (French dystonia association) Scientific Committee for many years.  She’s so dedicated to her patients and her field of work that she has decided to write a book on blepharospasm during her spare time and holidays! …

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August 1, 2018

Dystonia Europe on Youtube

Have you seen our Youtube channel? https://www.youtube.com/user/DystoniaEurope Follow us here to get our latest videos! At our 25th Anniversary Conference and D-DAYs 2018 in Brussels we live streamed and video-recorded our event for the first time. About 500 people watched the livestream during the two-day conference. Now all presentations are available on the Dystonia Europe youtube…

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August 1, 2018

Karl Speech App  

New KarlSpeech AAC App Launched June 2018   – Developed by Dystonia Sufferer’s Parents  The KarlSpeech Smart Device App is an Augmentative Communications App (AAC) for people with severe Speech & Communications Difficulties. Designed specifically for Apple iPhone, iPad and iPod Touch, The App is integrated with Universal Symbols provided by SymbolStix.      The…

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June 30, 2018

Didi Jackson | In Memoriam 

Dystonia Europe announces, with great sadness, the passing of our former President, Didi Jackson on 14 February, 2018.  The 1980s and early 1990s were the early days of dystonia becoming better-understood by the medical profession, and it was very difficult for patients to obtain good information and medical advice.  Didi received her own diagnosis and…

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