The Reach Out, Reach All project aims to bring the dystonia community together, through film, animation, podcasts and webinars. Dystonia can be an isolating condition. It can be scary not knowing what the diagnosis means, not only for yourself but also how it might affect your friends and family. Although the community is large, individuals can…
Italy – A.R.D. and COVID-19
On February 21 the first person with a COVID-19 diagnosis was reported in Lombardy, 60 km from Milan. Starting from that date, the number of persons infected with this virus began to increase rapidly in Northern Italy and slowly in the rest of the country. On March 11 our government decided for a lockdown of…
Dystonia Awareness Month 2020 – Relaunch Jump for Dystonia
For this year’s dystonia awareness month we are planning a relaunch of our popular Jump for Dystonia activity! With a new touch and special surprises for you! Look out for information when we come closer to September! Left: Another fantastic Jump for dystonia Ambassador is Yvonne Maxwell in Ireland. She asks…
Dystonia Work during the Pandemic
It seems like only a few weeks ago life was totally normal and the Dystonia Europe Team was in the middle of preparing for our big annual conference D(ystonia)-DAYs 2020 to be held in Dublin next June. Bookings of venue and accommodations were made, speakers were confirmed and social activities being planned when it all…
Participate in a Study by EFNA on Stigma and Neurological Conditions
During Awareness Week 2020 The European Federation of Neurological Associations (EFNA), launched a survey on Stigma and Neurological Conditions . EFNA represents 20 European and International associations across a wide variety of neurological disease areas, such as multiple sclerosis, epilepsy, migraine, ADHD, Movement Disorders such as Dystonia and Parkinson’s, to mention just a few. In…
