September 10, 2021

Emma, one patient who underwent DBS for dystonia and taught me a lesson

Benedetta Storti1,2, Camillo Foresti2, Roberto Donati 3 1 Department of Neurology, Milano Bicocca, Italy 2 UOS Neurophysiology, UOC Neurology ASST      Papa Giovanni XXIII, Bergamo, Italy 3 UOC Neurosurgery ASST Papa Giovanni XXIII, Bergamo, Italy   Introduction Dystonia associated with DYT1 mutation is an early-onset isolated dystonia usually first apparent with focal symptoms. Over time, the…

Show this Post ›
September 8, 2021

Improving quality of life of people living with Dystonia

Deep Brain Stimulation (DBS) is a safe and well-established therapy that can alleviate the symptoms of dystonia. When used in conjunction with visualisation software, such as GUIDETM XT, it becomes a more efficient and effective therapy. Following on our recent newsletter in Dystonia Europe (Spring 2021 Edition, page 9-10) presenting the benefits of GUIDETM XT…

Show this Post ›
September 5, 2021

Milan’s Clinic for movement disorders, Botulinum toxin and personalised rehabilitation plans

The Sol Diesis clinic for musicians, that has been running since 2004 within the IRCCS Don Gnocchi Foundation, is devoted to the prevention and treatment of neuromuscular diseases of professional and amateur musicians. “The patient’s medical and musical history, and a careful observation of the musician when he  performs- says doctor Rosa Maria Converti,  head…

Show this Post ›
September 1, 2021

Welcome to September and Dystonia Awareness Month 2021!

The Dystonia Europe Team is very excited about the upcoming awareness month and all the activities that will take place. We kick off the month with our Annual Dystonia Conference: Dystonia Day 2021 on Saturday 4 September. For program, speakers and link to registration see: We hope to see a big audience from around the…

Show this Post ›